Genetic Counseling, Support and Advocacy Groups Online

Genetic Counseling, Support and Advocacy Groups Online

• Clinic Directory
  www.genetests.org/clinics/
  Database of genetics clinics, searchable by location, population served and specialty. Hosted by GeneTests.
   
• Coalition for Genetic Fairness
  www.geneticfairness.org/index.html
  Advocacy group for federal legislation regarding genetics discrimination through the National Partnership for Women & Families.
   
• Find a Genetic Counselor
  nsgc.org/p/cm/ld/fid=164
  A searchable database of genetics counseling services. Search by location, name, institution, type of practice or specialty. Hosted by the National Society of Genetic Counselors.
   
• The Genetic Alliance
  www.geneticalliance.org
  A nonprofit health advocacy organization that transforms health through genetics, promoting an environment of openness centered on the health of individuals, families, and communities.
   
• Genetic Centers, Clinics and Departments
  www.kumc.edu/gec/prof/genecntr.html
  Comprehensive resource list for genetic counseling, with links to genetic centers and clinics, associations and university genetics departments. Hosted by the University of Kansas Medical Center.
   
• Genetics and Rare Conditions Site
  www.kumc.edu/gec/support
  Information on genetic conditions and birth defects for professionals, educators and individuals, including national and international advocacy and support groups. Comprehensive list of resources organized by disease/condition. Hosted by the University of Kansas Medical Center.
   
• National Organization for Rare Disorders
  www.rarediseases.org
  Wide array of genetic-related information
   
• Waisman Center - University of Wisconsin-Madison
  www.waisman.wisc.edu
  Dedicated to the advancement of knowledge about human development, developmental disabilities and neurodegenerative diseases.