ELSI Policy and Legislation Online

ELSI Policy and Legislation Online

• American Academy of Pediatrics: Ethical Issues With Genetic Testing in Pediatrics
  http://pediatrics.aappublications.org/content/110/2/360.full.html
  Recommendations on newborn screening and genetic testing in children
   
• Bioethics Resources on the Web
  bioethics.od.nih.gov
  Links to bioethics resources
   
• bioethics.net
  www.bioethics.net
  Links to articles on bioethics and genetics
   
• DNA Patent Database
  dnapatents.georgetown.edu
  Searchable database of U.S. DNA-based patents issued by the USPTO
   
• The Council for Responsible Genetics
  www.councilforresponsiblegenetics.org
  Information on the social, ethical and environmental implications of genetic technologies
   
• Ethical, Legal, & Social Issues
  www.ornl.gov/sci/techresources/Human_Genome/elsi/elsi.shtml and
  www.genome.gov/10001618/the-elsi-research-program/
  Information, articles, and links on a wide range of issues
   
• Genetics & Ethics
  http://genethics.ca/
  Information on the social, ethical and policy issues associated with genetic and genomic knowledge and technology
   
• Genetics and Public Policy Center
  dnapolicy.org
  Information on genetic technologies and genetic policies for the public, media and policymakers
   
• Genome Technology and Reproduction: Values and Public Policy and The Communities of Color & Genetics Policy Project
  www.sph.umich.edu/genpolicy
  Two subprojects combined to form a five year project designed to provide policy recommendations based on public perceptions and responses to the explosion of genetic information and technology.
   
• HumGen
  www.humgen.org/home?lang=1
  Access to a comprehensive international database on the legal, social and ethical aspects of human genetics
   
• National Information Resources on Ethics & Human Genetics
  bioethics.georgetown.edu/explore-bioethics/genetics-and-ethics/
  Links to resources on ethics and human genetics
   
• NCSL - Genetic Technologies Project
  www.ncsl.org/IssuesResearch/Health/GeneticTechnologiesProject/tabid/14524/Default.aspx
  Status of legislative actions and acess to policy briefs on genetic issues of concern to state legislators
   
• The President's Council on Bioethics
  www.bioethics.gov
  Information on current bioethical issues
   
• Georgetown Bioethics Library
  bioethics.georgetown.edu/library-materials/digital-collections/bioethical-issues-scope-notes-archive/
  Information on various aspects of genetics and ethics
   
• THOMAS Legislative Information on the Internet
  thomas.loc.gov
  Searchable database of U.S. legislation
   
• Your Genes Your Choices
  ehrweb.aaas.org/ehr/books/index.html
  Describes the Human Genome Project, the science behind it, and the ethical, legal, and social issues that are raised by the project