Defining Research Needs and Assessing Implications for Research Following the Release of the ACMG Recommendations for Incidental Findings in Clinical Genome Sequencing

Defining Research Needs and Assessing Implications for Research Following the Release of the ACMG Recommendations for Incidental Findings in Clinical Genome Sequencing

February 18-19, 2014
NIH Intramural Sequencing Center. Rockville, Md.

Roster of Participants

Ronit Abramson Scientific Program Analyst Division of Policy, Communications, and Education National Human Genome Research Institute, NIH Phone: 301-496-1132 Email: ronit.abramson@nih.gov	Scott Kim, M.D., Ph.D. Senior Investigator Department of Bioethics National Institutes of Health Phone: 301-435-8706 Email: scott.kim@nih.gov
Alice Bailey Scientific Program Analyst Division of Policy, Communications, and Education National Human Genome Research Institute, NIH Phone:  301-443-1847 Email: baileyali@mail.nih.gov	Katie Lewis, M.S., C.G.C. Genetic Counselor and Protocol Coordinator ClinSeq® Project National Human Genome Research Institute, NIH Phone: 301-594-3063 Email: katie.lewis2@nih.go
Benjamin Berkman, J.D., M.P.H. Deputy Director of the Bioethics Core Department of Bioethics National Human Genome Research Institute, NIH Phone: 301-496-1531 Email: berkmanbe@mail.nih.gov	Nicole Lockhart, Ph.D. Program Director Ethical, Legal and Social Implications Research Division of Genomics and Society National Human Genome Research Institute, NIH Phone: 301-435-5697 Email: lockhani@mail.nih.gov
Barbara A. Bernhardt, M.S., C.G.C. Clinical Professor of Medicine Genetic Counselor Hospital of the University of Pennsylvania Phone: 215-614-0287 Email: barbara.bernhardt@uphs.upenn.edu	Elaine Lyon, Ph.D. Associate Professor of Pathology Division Medical Director, Genetics ARUP Laboratories, The University of Utah Phone: 801-583-2787 Email: lyone@aruplab.com
Laura M. Beskow, M.P.H., Ph.D. Associate Professor Duke Clinical Research Institute Phone: 919-668-2293 Email: laura.beskow@duke.edu	Teri Manolio, M.D., Ph.D. Director Division of Genomic Medicine National Human Genome Research Institute, NIH Phone: 301-402-2915 Email: manolio@nih.gov
Leslie G. Biesecker, M.D. Chief & Senior Investigator Genetic Disease Research Branch National Human Genome Research Institute, NIH Phone: 301-402-2041 E-mail: lesb@mail.nih.gov	Jean McEwen J.D., Ph.D. Program Director Ethical, Legal and Social Implications Research Division of Genomics and Society, NHGRI, NIH Phone: 301-402-4997 Email: mcewenj@mail.nih.gov
Vence Bonham, Jr., J.D. Senior Advisor to the NHGRI Director on Genomics and Health Disparities Office of the Director Chief, Education and Community Involvement Branch Phone: 301-594-3973 Email: bonhamv@mail.nih.gov	Joseph D. McInerney, M.A., M.S. Executive Vice President American Society of Human Genetics Phone: 301-634-7307 Email: jmcinerney@ashg.org
Jeffrey R. Botkin, M.D., M.P.H., Associate Vice President for Research Integrity Human Genome Center University of Utah School of Medicine Phone: 801-581-7170 E-mail: jeffrey.botkin@hsc.utah.edu	Robert Nussbaum, M.D. Professor, Department of Medicine Chief, Division of Medical Genetics University of California San Francisco Phone: 415-476-3200 Email: nussbaumr@humgen.ucsf.edu
Lawrence Brody, Ph.D. Director Division of Genomics & Society National Human Genome Research Institute, NIH Phone: 301-496-7824 Email: lbrody@mail.nih.gov	Kelly E Ormond, M.S., C.G.C., L.G.C. Associate Professor, Department of Genetics Stanford University Phone: 650-736-9847 Email: kormond@stanford.edu
Lisa Brooks, Ph.D. Program Director, Genetic Variation Program Division of Genomic Sciences National Human Genome Research Institute, NIH Phone: 301-435-5544 Email: brooksl@exchange.nih.gov	P. Pearl O'Rourke, M.D. Director, Human Research Affairs and ESCRO Partners Healthcare Center Phone: 617-424-4152 Email: POROURKE@PARTNERS.ORG
R. Nick Bryan, M.D., Ph.D. Emeritus Professor of Radiology Department of Radiology Perelman School of Medicine University of Pennsylvania Health System Phone: 215-662-3660 Email: nick.bryan@uphs.upenn.edu	Dina N. Paltoo, Ph.D., M.P.H. Director, Genetics, Health, and Society Program Office of Clinical Research and Bioethics Policy Office of Science Policy, Office of the Director, NIH Phone: 301-496-9838 Email: dp249p@nih.gov
Morgan Butrick, M.S., CGC Certified Genetic Counselor Laboratory of Immunology National Institute of Allergy and Infectious Diseases, NIH Phone: 301-435-6691 Email: morgan.butrick@nih.gov	Heidi L. Rehm, Ph.D., F.A.C.M.G. Associate Professor of Pathology BWH and Harvard Medical School Director, Laboratory for Molecular Medicine Partners Healthcare Center Phone: 617-768-8291 Email: hrehm@partners.org
Wendy Chung, M.D., Ph.D. Assistant Professor of Pediatrics Columbia University, Weill Medical College Phone: (212) 851-5313 Email: wkc15@columbia.edu	Laura Lyman Rodriguez, Ph.D. Director Division of Policy, Communication, and Education National Human Genome Research Institute, NIH Phone: 301-594-7185 Email: rodrigla@mail.nih.gov
James P. Evans, M.D., Ph.D. Bryson Distinguished Professor of Genetics & Medicine Editor-in-Chief; Genetics in Medicine Department of Genetics University of North Carolina at Chapel Hill Phone: (919) 966-2007 Email: jpevans@med.unc.edu	Karen Rothenberg, J.D., M.P.A. Senior Advisor to Director on Genomics and Society National Human Genome Research Institute, NIH Office of the Director Phone: 301-318-2674 Email: karenrh@mail.nih.gov
Jeremy Garrett, Ph.D. Research Associate in Bioethics Assistant Professor of Pediatrics & Adjunct Assistant Professor of Philosophy Children's Mercy Bioethics Center Phone: 816-701-5282 Email: jgarrett@cmh.edu	Kate Saylor, M.S. Health Policy Analyst Division of Policy, Communications, and Education National Human Genome Research Institute, NIH Phone: 301-594-3516 Email: saylork@mail.nih.gov
Christine Grady, M.S.N., Ph.D. Chief Department of Bioethics Phone: 301-496-2429 Email: cgrady@.nih.gov	Cary Scheiderer Health Science Policy Analyst Office of Science Policy, NIH Phone: 301-594-7740 Email: cary.scheiderer@nih.gov
Robert C. Green, M.D., M.P.H. Associate Professor of Medicine Division of Genetics, Brigham and Women's Hospital and Harvard Medical School Associate Director for Research, Partners HealthCare Center for Personalized Genetic Medicine Phone: 617-264-5834 Email: rcgreen@genetics.med.harvard.edu	Derek T. Scholes, Ph.D. Chief, Policy and Program Analysis Branch Division of Policy, Communication, and Education National Human Genome Research Institute, NIH Phone: 301-435-1747 Email: derek.scholes@nih.gov
Eric D. Green, M.D., Ph.D. Director National Human Genome Research Institute, NIH Phone: 301-496-0844 Email: egreen@mail.nih.gov	Jonathan Sellors Legal Counsel and Company Secretary UK Biobank Partner, Finers Stephens Innocent LLP Phone: +44 (0)20 7344 5513 (international) Email: jonathan.sellors@hkfsi.com
Gail Henderson, Ph.D. Professor and Chair Department of Social Medicine UNC School of Medicine Phone: 919-843-8268 Email: gail_henderson@med.unc.edu	Nicolle K. Strand, JD, M.Bioethics Research Analyst Presidential Commission for the Study of Bioethical Issues Phone: 202-233-3984 Email: Nicolle.Strand@bioethics.gov
Gail Herman, M.D., Ph.D. President, American College of Medical Genetics Physician and Principal Investigator Center for Molecular and Human Genetics The Research Institute at Nationwide Children's Hospital Phone: 614-355-3483 Email: Gail.Herman@nationwidechildrens.org	Michael S. Watson, M.S., Ph.D. Executive Director American College of Medical Genetics and Genomics Phone: 301-718-9603 Email: mwatson@acmg.net
Lucia Hindorff, Ph.D., M.P.H. Epidemiologist Division of Genomic Medicine National Human Genome Research Institute, NIH Phone: 301-402-5759 Email: hinforffl@mail.nih.gov	Ran Zhang, Ph.D. Program Analyst Extramural Research Program National Inst. of Neurological Disorders and Stroke, NIH Email: zhangr@mail.nih.gov
Sara Hull, Ph.D. Director of the Bioethics Core Department of Bioethics National Institutes of Health Phone: 301-435-8712 Email: shull@mail.nih.gov