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Division of Genomics and Society Outreach and Activities Archive
Division of Genomics and Society Outreach and Activities Archive
- Genetic Testing
- Genetic Discrimination and Health Insurance
- Issues Related to the Conduct of Genetic Research
- Underrepresented Minorities
- Specific Research Topics
- Program Reviews
- ELSI Planning and Evaluation History
Genetic Testing
- Follow-up Workshop to the Consensus Development Conference on Genetic Testing for CF (10/97)
- Promoting Safe and Effective Genetic Testing in the United States: Final Report of the Task Force on Genetic Testing (09/97)
- Genetic Testing for Cystic Fibrosis Consensus Development Conference Statement [consensus.nih.gov] (04/97)
- NIH Workshop Statement - Reproductive Genetic Testing: Impact on Women (11/91)
- NIH Workshop Statement - Population Screening for the CF Gene (07/90)
Genetic Discrimination and Health Insurance
- Genetic Information and the Workplace (01/98)
- NIH-DOE ELSI Working Group and National Action Plan on Breast Cancer Workshop on Genetic Discrimination and the Workplace (10/96)
- NIH-DOE ELSI Working Group and National Action Plan on Breast Cancer Workshop on Genetic Discrimination and Health Insurance (07/95)
- Insurance Task Force Report--Executive Summary (05/93)
- Genetic Information and Health Insurance - Report of the Task Force on Genetic Information and Insurance (05/93)
Issues Related to the Conduct of Genetic Research
- Report of the First Community Consultation on the Responsible Collection and Use of Samples for Genetic Research[nigms.nih.gov] (09/00)
- NCHGR/CDC Workshop on Informed Consent for Genetics Research Using Stored Tissue Samples (07/94)
- Protecting Human Research Subjects: 1993 OPRR IRB Guidebook Chapter on Human Genetic Research (1993)
- Report of the Working Group on Ethical, Legal, and Social Issues Related to Mapping and Sequencing the Human Genome
(04/90)
Underrepresented Minorities
- Summary of Grantees' Workshop on Strategies for Increasing the Number of Underrepresented Minorities Participating in Genomics and ELSI Research (11/01)
- Plan for Increasing the Number of Underrepresented Minorities Trained in Genomics and ELSI Research (2001)
Specific Research Topics
- Studying interactions Among Social, Behavioral & Genetic Factors in Health (10/01)
- Cancer Genetic Studies Consortium (1998)
- Hereditary Hemochromatosis: Gene Discovery and Policy Meeting (03/97)
Program Reviews
- Report to the National Advisory Council for Human Genome Research (02/05)
- The Role of ELSI Research & Policy Activities in the NHGRI Plan (10/02)
- A Review and Analysis of the ELSI Research Programs at NIH and DOE (ERPEG Final Report) (02/00)
- Report of the Joint NIH/DOE Committee to Evaluate the Ethical, Legal and Social Implications Program of the Human Genome Project (12/96)
- Review of the ELSI Program: 1990-1995 (03/96)
Last Updated: September 9, 2016