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Data sharing is an important aspect of the research endeavor that ensures maximal use of participants’ data for scientific discovery, rigor and reproducibility, and more. NHGRI-funded researchers subject to NIH’s data sharing policies are expected to share comprehensive metadata and phenotypic data, and to use standard data collection protocols and standardized notation, to ensure the data are maximally useful to the broader scientific community.

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Last updated: February 19, 2025