Genomic Literacy Education and Engagement Strategic Visioning Meeting
Event Details
On March 13-14, 2017, the National Human Genome Research Institute (NHGRI) in partnership with the Foundation for the National Institutes of Health (FNIH) hosted a strategic visioning meeting for a proposed GLEE Initiative.
The meeting was held at the Natcher Conference Center on the NIH Main Campus in Bethesda, Maryland and ~160 people attended from diverse communities including academia, industry, community-based organizations, non-profits, government and K-16 education organizations. At the meeting, participants discussed proposed elements from working groups focused on each of the three target audiences (K-16 students and educators, health care providers and the community/public) and proposed a cohesive strategic vision for the next 1-5 years.
to
Natcher Conference Center
Ruth L. Kirschstein Auditorium
Agenda
- Monday, March 13, 2017
- 8:00 - 8:30 a.m. - Registration
- 8:30 - 9:00 a.m. - Welcome & Overview
Eric Green, M.D., Ph.D.
Director, National Human Genome Research Institute - 9:00 - 9:10 a.m. - Perspectives from the Foundation for the National Institutes of Health (NIH)
Maria Freire, Ph.D.
President and Executive Director, Foundation for the NIH - 9:10 - 9:25 a.m. - Community Perspectives I: The Need for Genomic Literacy
Bob Nussbaum, M.D.
Invitae - 9:25 - 9:40 a.m. - Community Perspectives II: The Need for Genomic Literacy
Louisa Stark, Ph.D.
University of Utah - 9:40 - 10:25 a.m. - K-16 Working Group Presentation
Bryony Ruegg, Ph.D.
Bio-Rad Laboratories
Beth Tuck
National Human Genome Research Institute - 10:25 - 10:45 a.m. - Break
- 10:45 - 11:30 a.m. - Healthcare Provider Working Group Presentation
Katie Johansen Taber, Ph.D.
American Medical Association
Bob Wildin, M.D.
National Human Genome Research Institute - 11:30 a.m. - 12:15 p.m. Community/Public Working Group Presentation
Louisa Stark, Ph.D.
University of Utah
Carla Easter, Ph.D.
National Human Genome Research Institute - 12:15 - 12:20 p.m. Instructions for Breakout Sessions
Beth Tuck
National Human Genome Research Institute - 12:20 - 1:15 p.m. - Lunch
- 1:15 - 4:30 p.m. - Working Group Discussions
K-16 Working Group: Room F1/F2
Community/Public Working Group: Room E1/E2
Healthcare Provider Working Group: Room D (and Room A if needed) - 4:30 - 4:45 p.m. - Break
- 4:45 - 5:00 p.m. Regroup - Questions for Tomorrow
Laura Lyman Rodriguez, Ph.D.
National Human Genome Research Institute - 5:30 - 7:00 p.m. - Reception
- Tuesday, March 14, 2017
- 8:30 - 8:45 a.m. - Charge for Day 2
Carla Easter, Ph.D.
National Human Genome Research Institute - 8:45 - 9:30 a.m. - K-16 Working Group Summary
White Paper - 9:30-10:15 a.m. - Healthcare Provider Working Group Summary
White Paper - 10:15 - 10:30 a.m. - Break
- 10:30 - 11:15 a.m. - Community/Public Working Group Summary
- 11:15 - 11:25 a.m. - Group Picture
- 11:25 a.m. - 12:30 p.m. - Lunch
- 12:30 - 1:30 p.m. - Synthesis and Visioning Discussion
Facilitated by Larry Brody, Ph.D.
National Human Genome Research Institute - 1:30 - 2:00 p.m. - Developing an Action Plan and Next Steps
Facilitated by Eric Green, M.D., Ph.D.
National Human Genome Research Institute - 2:00 p.m. - Adjourn
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Attendee List
Name Institution Frederica Adelman Smithsonian Associates Terry Adkins Myriad Genetics Philip Alderson NIH/NLM Maria Alvarez El Paso Community College Zeke Alvarez-Saavedra miniPCR Kathy Arnos Gallaudet University Deana Around Him National Congress of American Indians Sylvia Au Hawaii State Department of Health Kellan Baker Center for American Progress (CAP) Lu Barker Association for Molecular Pathology (AMP) Tony Beck NIH/NCATS (SEPA) Suzanne Belinson Blue Cross Blue Shield (BCBS) Ada Bends Rocky Mountain Tribal Leaders Council Judith Benkendorf American College of Medical Genetics (ACMG) Jeremy Bennett Myriad Genetics Kathy Blazer City of Hope Kate Blizinsky NIH/OD Mark Bloom Biological Sciences Curriculum Study (BSCS) Jermane Bond Health Equity Analytics Lab Laura Bonetta Howard Hughes Medical Institute BioInteractive (HHMI) Vence Bonham NIH/NHGRI Jo Boughman University of Maryland Rosalina Bray NIH/OD Larry Brody NIH/NHGRI Jennifer Broo St. Ursula Academy Alyssa Brooks NIH/NINR Lesley Brown Baltimore City Community College Jen Carroll Illumina June Carroll Mt. Sinai Toronto Darlene Cavalier SciStarter; Science Cheerleaders Khanh Chau Walter Johnson High School Amanda Chavenson Smithsonian Associates Wen-ying Sylvia Chou NIH/NCI Elizabeth Cohn Columbia University Elizabeth Collaton WETA (PBS) Tim Curry Mayo Clinic Gwen Darien National Patient Advocate Foundation Shoumita Dasgupta Association of Professors of Human and Medical Genetics (APHMG) Christina Daulton NIH/NHGRI Jeff Day NIH/NLM Ernesto del Aguila NIH/NHGRI Thao Do 23andMe Kate Donigan FDA Ysabel Duron Latinas Contra Cancer Carla Easter NIH/NHGRI Emily Edelman Jackson Laboratory (Jax) John Emmerich Discovery World Cindy Encarnacion St. Louis Science Center David Evans National Science Teachers Association (NSTA) Jim Evans University of North Carolina School of Medicine Matt Ferber Mayo Clinic David Flannery American College of Medical Genetics (ACMG) Sharon Flynn NIH/NINR Ruby Gadelrab 23andMe Marnie Gelbart pgEd Jim Goldberg Counsyl Vanessa Gonzalez Smithsonian Institution National Museum of Natural History (NMNH) Eric Green NIH/NHGRI Ella Greene-Moton University of Michigan, School of Public Health, Ann Arbor Sue Gross Phenogen Sciences Inc Chris Gunter Autism Center, Emory University Bassem Haddad Georgetown University Susanne Haga Duke University Michael Hahn NIH/NHGRI Faith Harrow NIH/NHGRI Rich Haspel Harvard University Allen Herman HEAL Rebecca Hong NIH/NHGRI Sarah Hull NIH/NHGRI Belen Hurle NIH/NHGRI Henrietta Hyatt-Knorr NIH/GARD Mary Jackson Scroggins Pinkie Hugs, LLC and In My Sister's Care Jean Jenkins DNAandU Katie Johansen Taber American Medical Association Sam Johnson American Association of Colleges of Pharmacy (AACP) Sonya Jooma NIH/NHGRI Jim Kahler USDA/NIFA - 4-H National Headquarters Cristina Kapustij NIH/NHGRI Esther Kim 23andMe Laura Koehly NIH/NHGRI Laura Koontz FDA Sunil Kripalani Vanderbilt University Neil Lamb HudsonAlpha Institute for Biotechnology Lisa Lauxman USDA/NIFA - 4-H National Headquarters Joslynn Lee DNA Learning Center/Cyverse (DNALC) Minnky Lee NIH/NHGRI Darryl Leja NIH/NHGRI Elissa Levin Helix Ashley Lewis NIH/NHGRI Janine Lewis NIH/GARD Len Lichtenfeld American Cancer Society (ACS) Michael Linderman Middlebury College Nicole Lockhart NIH/NHGRI Becky Menlove Natural History Museum of Utah Donna Messersmith NIH/NHGRI Patricia Miller Consultant Steve Mockrin NIH/OD Valentine Mukundente Community Faces of Utah Steve Murphy MedScape/WebMD Kiran Musunuru American Heart Association (AHA) Benedetta Naglieri MdBio Foundation (BioBus) Bob Nussbaum Invitae Ron O'Brien Thermo Fisher Scientific James O'Leary Genetic Alliance Francis Onduso Sitting Bull College Chol Pak Thermo Fisher Scientific Jef Palframan NIH/OD Kiara Palmer NIH/NHGRI Virginia Pantella Gaithersburg Middle School Devona Perrineau NIH/NHGRI Susan Persky NIH/NHGRI Sharon Plon Baylor College of Medicine Norma Poll-Hunter Association of American Medical Colleges (AAMC) Karen Possemato Illumina Tiffany Powell-Wiley NIH/NHLBI Kanika Pulliam American Society of Human Genetics (ASHG) Adrian Quijada Tohono O'odham Community College Michael Rackover Philadelphia University Teresa Ramirez NIH/NHGRI Jaclyn Reeves-Pepin National Association of Biology Teachers (NABT) Jacques Retief Illumina Daphne Rickard Irving High School; HOSA-Future Health Professionals Nadeene Riddick NSF Rebecca Roberts Smithsonian Associates Laura Rodriguez NIH/NHGRI Carla Romney Boston University - CityLab Anne Rosenwald Georgetown Beth Ruedi AAAS, Science in the Classroom Bryony Ruegg Bio-Rad Laboratories Maya Sabatello Columbia University Rhonda Schonberg National Society of Genetic Counselors (NSGC) Michelle Smith University of Maine Michelle Snyder NIH/GARD Raman Sood NIH/NHGRI Sarah South Ancestry.com Patricia Spears North Carolina State University Louisa Stark University of Utah Genetic Science Learning Center (GSLC) Barry Starr The Tech Erik Stegman Center for Native American Youth Amy Swanson Illumina Temese Szalai Madarka Robert Tai UVA O. Fahina Tavake-Pasi National Tongan American Society Jim Thomas NIH/NHGRI Ivory Toldson Quality Education for Minorities (QEM) Network Beth Tuck NIH/NHGRI Jeff Vance American Neurological Association (ANA) Lisa Vincent GeneDx Caer Vitek Mayo Clinic Lorelei Walker University of Washington Health Equity Circle Patty Ward Museum of Science and Industry Steven Weinberger American College of Physicians (ACP) Kristin Weitzel University of Florida - College of Pharmacy Kris Wetterstrand NIH/NHGRI Wanda Whitney NIH/NLM and DC Area Health Sciences Libraries Cathy Wicklund Northwestern, Genetic Counseling Program John Wilbanks Sage Bionetworks Bob Wildin NIH/NHGRI Chris Williams NSF Rosann Wise NIH/NHGRI Jeff Witherly NIH/NHGRI Doris Withers Medgar Evars College Charlie Wray Jackson Laboratory (Jax) Robin Wright University of Minnesota Leisa Zigman The Genome Partnership (AGBT)
Last updated: May 20, 2019