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News Release
My Family Health Portrait is a downloadable tool to complete a family health history on a personal computer.
Health
Knowledge of your family health history can help you and your healthcare providers identify patterns of inheritance and risk factors.
… your family's health history can help you discover your genomic heritage and risks, and guide healthy lifestyle …
For Patients and Families
An adult has an "undiagnosed condition" when a physician is unable to find a diagnosis for certain characteristics or symptoms.
… Institutes of Health has developed ClinicalTrials.gov , a database accessible to the public through the Web. This database provides patients, family members and members of the …
For Patients and Families
A child has an "undiagnosed condition" when a physician is unable to find a diagnosis for certain characteristics or symptoms.
… Institutes of Health has developed ClinicalTrials.gov , a database accessible to the public through the Web. This database provides patients, family members and members of the …
For Patients and Families
List of resources to help you find accurate and reliable information on genetic and rare diseases. ​
… www.ncbi.nlm.nih.gov/pubmed/ PubMed is NIH's searchable database of published scientific and medical literature. … ORPHANET is a French multilingual database dedicated to information on rare diseases and orphan …
News Release
Dr. William Gahl, NHGRI Clinical Director, gave the Samuel Pruzansky Memorial Lecture on March 23 for the March of Dimes Clinical Genetics Conference.
… of the world. The ultimate hope is to have a central database to share research, data, cases, de-identified DNA …
Genetic Disorders
Cystic fibrosis is a genetic disease that causes the body to produce thick, sticky mucus that clogs the lungs, leads to infection, and blocks the pancreas.
… for treating infections caused by P. aeruginosa. Gene Database Speeds Research As the amount of information about …
News Release
Researchers identified 13 gene regions that influence cholesterol levels, some of which affected people differently if they are smokers or former smokers.
… 126 groups. In addition to the need for participant diversity, detecting gene-lifestyle interactions requires … are part of the  Cohorts for Heart and Aging Research in Genomic Epidemiology (CHARGE) , which facilitates genome-wide … a particular disease. The bigger the study group, the more genomic markers can be identified. The study builds on CRGGH …
MINC
Assessing your own work environment is a starting point for deciding who will be involved, what is needed, and establishing a plan of action.
… members: Who are the key stakeholders for integrating new genomic competencies that currently exist within your … interventions provided (i.e., acute, surgical, medical)   Diversity of your service area   Age   Ethnicity   … will be included?) Inpatient   Outpatient   Current use of genomic information or genomic services in the practice …
MINC
The MINC teams were made up of an administrator and an educator. They learned a lot from this initiative that they wanted to share with you.