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Policy Issues

En una decisión histórica en junio de 2013, el Tribunal Supremo determinó que el ADN en su forma natural no puede ser patentado.

Policy Issues

Intellectual Property in Genomics

In June 2013, the Supreme Court determined that DNA in its natural form cannot be patented.

The Informed Consent Resource

Required Elements of the Consent Form

Explore the basic elements of informed consent that are required by the Common Rule and that are relevant to genomics.

Policy Issues

Investigaciones genómicas en las que seres humanos se encuentran bajo estudio

El uso de seres humanos en las investigaciones biomédicas, clínicas y socioconductuales puede ofrecer entendimiento y descubrimientos que no pudieran obtenerse de ninguna otra manera.

Policy Issues

Highlights of Revisions to the Common Rule

Revisions to the Common Rule modernize, simplify, and enhance oversight for human subjects research in the United States.

Policy Issues

Return of Research Results

Clinical research may yield new health-related information about volunteers who have chosen to participate in the studies.

Policy Issues

Human Subjects Research

Federally-funded research with human participants must comply with regulations that protect the rights and welfare of the participants.

Policy Issues

Health Disparities

NHGRI wants to ensure that all populations benefit from the advances of genomics research.

Policy Issues

What’s Happening in Genome Editing Right Now?

Scientific institutions are developing recommendations to support the responsible use of human gene-editing research.

Policy Issues

What do People Think About Genome Editing?

Patients with genetic disorders and members of the public have diverse about germline genome editing.