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- Developmental Genotype-Tissue Expression (dGTEx)1
- Multi-Omics for Health and Disease (Multi-Omics)1
- Ethical, Legal and Social Implications (ELSI) Research Program7
- Genomics-Enabled Learning Health Systems (gLHS)2
- Genome Technology Program4
- Enhancing Opportunities in Computational Genomics and Data Science1
- Human Genome Reference Program (HGRP)2
- Impact of Genomic Variation on Function (IGVF) Consortium3
- Advancing Genomic Medicine Research (AGMR)1
- Encyclopedia of DNA Elements (ENCODE) Project1
- Molecular Phenotypes of Null Alleles in Cells (MorPhiC)1
- Clinical Genome (ClinGen) Resource1
- Genomic Innovator Awards2
- Polygenic RIsk MEthods in Diverse populations (PRIMED) Consortium1
- NHGRI Genomic Data Science Analysis, Visualization and Informatics Lab-space (AnVIL)2
- Genomics Research to Elucidate the Genetics of Rare Diseases (GREGOR) Consortium2
News Release
NIH will hold a Reddit "Ask Me Anything" with members of its NHGRI Ethical, Legal and Social Implications Research Program.
… … On Monday, January 29, 2018, the National Institutes of Health will hold a Reddit "Ask Me Anything" (AMA) with members of the National Human Genome Research Institute's (NHGRI) Ethical, Legal and Social Implications Research Program, a part of the Division of Genomics and Society. … Impact on Society Members …
Policy Issues
Federally-funded research with human participants must comply with regulations that protect the rights and welfare of the participants.
… The use of human participants in biomedical, clinical and social-behavioral research can provide insights and discoveries that could not … with regulations that protect the rights and welfare of the participants, and require that researchers clarify the …
Policy Issues
Clinical research may yield new health-related information about volunteers who have chosen to participate in the studies.
… When conducting clinical research studies, scientists may discover new health-related … to participate in the studies. This raises the question of when and how it is appropriate for the scientists to look … policymakers, and research participants about the return of individual research results (IRRs) and incidental findings …
Policy Issues
Participating in genomics research is an opportunity to support exploration of the genome and help scientists understand, prevent, detect and treat disease.
… Participating in genomics research is an opportunity to support scientific exploration of the genome and to help NIH in its mission to understand, … may also gain some individual benefit, such as diagnosis of a disease or access to a treatment in development. … A …
News Release
Oral history videos feature conversations with genomics researchers and an interactive discussion with the institute's three directors.
… Communications and Public Liaison Branch … A collection of oral history videos released today by the National Human Genome Research Institute (NHGRI) features candid conversations with … who from 2002 to 2010 served as the director of NHGRI's Division of Extramural Research and as deputy director of the …
Fact Sheet
Participation in genomics research is essential for improving the health of everyone.
… similar in most ways, our biological processes make each of us unique. Many aspects of those processes are encoded in our DNA, which is based on … who have given permission for their DNA to be used for research are from European ancestry, making many populations …
News Release
An online Informed Consent Resource created in 2009 by NHGRI has been updated to keep pace with advances in genomics over the past several years
… studies are increasingly integral to the advancement of a spectrum of disease-based research. As knowledge stemming from the completion of the … said Laura Lyman Rodriguez, Ph.D., director of the Division of Policy, Communications, and Education (DPCE), at …
The Informed Consent Resource
Explore genomics-relevant considerations for informed consent and guidance on how to approach them.
… to inform participants about the risks and benefits of participating in a research project. … The informed consent process and consent … future research and increase the scientific value of the data. For NIH-funded research, investigators are …
News Release
ENCODE program directors in the Division of Genome Sciences turned to Reddit to answer questions from the Reddit community.
… Ph.D. … On February 9, 2017, to highlight the announcement of new funding awards, ENCODE program directors in the Division of Genome Sciences at NHGRI, Drs. Elise Feingold, … the whole "Ask Me Anything!") … The National Human Genome Research Institute's ENCyclopedia Of DNA Elements (ENCODE) …
Fact Sheets
Chromosome abnormalities can either be numerical or structural and usually occur when there is an error in cell division.
… abnormality mean an individual is either missing one of the chromosomes from a pair or has more than two … abnormalities usually occur when there is an error in cell division. There are two kinds of cell division, mitosis and meiosis. Mitosis results in two cells …