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- Multi-Omics for Health and Disease (Multi-Omics)1
- Ethical, Legal and Social Implications (ELSI) Research Program5
- Genomics-Enabled Learning Health Systems (gLHS)2
- Genome Technology Program5
- Impact of Genomic Variation on Function (IGVF) Consortium1
- Clinical Genome (ClinGen) Resource1
- Polygenic RIsk MEthods in Diverse populations (PRIMED) Consortium1
- Genomics Research to Elucidate the Genetics of Rare Diseases (GREGOR) Consortium2
For Patients and Families
A list of resources and information on financial aid for medical treatment.
… are some resources, however, that may help in finding information on financial aid for medical treatment. … Visit these websites frequently for new information as it becomes available. Talk to your state or … or social workers at your local hospital for more information on available resources. The materials provided …
Policy Issues
There are laws and policies that serve to protect the privacy of individuals' genomic information.
… privacy should be respected when their genomic information is used for research, clinical applications or … genetic and genomic privacy in these domains, along with information on the specific laws and policies that protect the privacy of genetic and genomic information. In the United States, the applicable privacy …
Staff
Rebecca Hong is a scientific program analyst in the Policy and Program Analysis Branch at the National Human Genome Research Institute.
… School of Foreign Service in 2015 with a B.S. in science, technology and international affairs, with a concentration in … … Rebecca Hong, genomic policy, FDA regulation, genomic technology, legislation, AIDS research, genome editing … Rebecca Hong, genomic policy, FDA regulation, genomic technology, legislation, AIDS research, genome editing … …
Staff
Julia Fekecs is a visual information specialist in NHGRI’s Office of Communications.
… Julia Fekecs … Julia Fekecs is a visual information specialist in NHGRI’s Office of Communications. … Related Content … Julia Fekecs … Julia Fekecs is a visual information specialist in NHGRI’s Office of Communications. … Julia Fekecs is a visual information specialist in NHGRI’s Office of Communications. … …
Talking Glossary
CRISPR (short for “clustered regularly interspaced short palindromic repeats”) is a technology that research scientists use to selectively modify the DNA of living organisms.
… regularly interspaced short palindromic repeats”) is a technology that research scientists use to selectively modify … regularly interspaced short palindromic repeats”) is a technology that research scientists use to selectively modify … regularly interspaced short palindromic repeats”) is a technology that research scientists use to selectively modify …
Policies and Guidance
NHGRI links to external websites to supplement the information found on our website.
… external websites to supplement the information found on our website. However, we cannot guarantee the accuracy of information provided on external websites. … Our website has … "off-site" Web page referenced from this server. For more information on exit notifications and disclaimers for …
For Patients and Families
The partnership engages communities on genomics, informs and shares perspectives, and impacts the focus of research.
… and guidance on the development of programs, tools, and information for various communities. Providing community …
Talking Glossary
Precision medicine (generally considered analogous to personalized medicine or individualized medicine) is an innovative approach that uses information about an individual’s genomic, environmental and lifestyle information to guide decisions related to their medical management.
… medicine) is an innovative approach that uses information about an individual’s genomic, environmental and lifestyle information to guide decisions related to their medical … medicine) is an innovative approach that uses information about an individual’s genomic, environmental and …
Policy Issues
Genome editing is a method that lets scientists change the DNA of many organisms, including plants, bacteria, and animals.
… to treat Layla, and instead used another genome editing technology called TALENs. Doctors tried many treatments … technologies are critical steps to ensure that this technology is ready for use in patients. Ethical concerns … and animals. … CRISPR, CRISPR-Cas9, Genome Editing Technology, Genome Editing, Genomic Technology, Gene Editing, …
Your Genome
Information about the relationship between genomics and health for patients, families and health professionals.
… and your family. Our resources will help you find detailed information about genetic disorders, the new science of … providing health professionals with reliable, up-to-date information on the rapidly expanding field of genomics. … … … Polygenic risk scores … Family Health History … Health … Information about the relationship between genomics and …