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- Ethical, Legal and Social Implications (ELSI) Research Program2
- Genomics-Enabled Learning Health Systems (gLHS)2
- Genome Technology Program4
- Enhancing Opportunities in Computational Genomics and Data Science1
- Impact of Genomic Variation on Function (IGVF) Consortium1
- Genomics Research to Elucidate the Genetics of Rare Diseases (GREGOR) Consortium1
Fact Sheet
Eugenics is the scientifically erroneous and immoral theory of “racial improvement” and “planned breeding,”
… myths and combat modern-day manifestations of eugenics and scientific racism, particularly as they affect people of … individuals. … What is NHGRI doing to address eugenics and scientific racism? When the HGP began in 1990, there was … of genomics, including the legacies of eugenics and scientific racism in the context of new and emerging genetic …
Educational Resources
Fact sheets explaining complex concepts in genomics research to a non-scientific audience.
… to explain complex concepts in genomics research to a non-scientific audience. Teachers, students and the general … explaining complex concepts in genomics research to a non-scientific audience. … Chromosome Abnormalities, Cloning, … explaining complex concepts in genomics research to a non-scientific audience. … Educational Resources …
News and Events
A collection of institute resources, background information, and points of contact for members of the press.
… collaborating with diverse communities, NHGRI accelerates scientific and medical breakthroughs that improve human … Communications handles media requests, inquiries from the scientific community and questions from the general public. …
Fact Sheet
A fact sheet detailing how the project began and how it shaped the future of research and technology.
… demonstrated that production-oriented, discovery-driven scientific inquiry—which did not involve the investigation of … be remarkably valuable and beneficial to the broader scientific community. The project was also a successful … of such scale with deep skepticism. These kinds of massive scientific undertakings have become more commonplace and …
Policies and Guidance
Frequently Asked Questions regarding the NHGRI's Metadata and Phenotypic Data Sharing Expectations.
… that ensures maximal use of participants’ data for scientific discovery, rigor and reproducibility, and more. … to ensure the data are maximally useful to the broader scientific community. … NHGRI uses the NIH definition of … “data that provide additional information intended to make scientific data interpretable and reusable (e.g., date, …
Fact Sheet
Participation in genomics research is essential for improving the health of everyone.
… to serve. In the past, both inaccessible and insufficient communication left some research participants unclear about … However, such exclusion can lead to notable gaps in scientific understanding and potentially reenforce existing …
Fact Sheets
Newborn screening tests use a dried blood sample collected during the first week after birth to measure the presence of disease biomarkers.
… examine these questions. The program's goal is to generate scientific evidence and ethical considerations that …
Fact Sheet
Informed consent is more than a form; it’s a process. What does it involve?
15 Ways Genomics Influences Our World
Genomics is ending diagnostic odysseys for patients with rare diseases.
… patients with the same condition to participate in scientific studies. When families band together, their …
About NHGRI
Answers to frequently asked questions on how the NHGRI receives and uses its funding.
… These plans clearly enumerate program objectives to the scientific community and the public, and provide measurable … are within program priorities. NHGRI is counseled on the scientific merit of proposed research by three primary, … proposals; the Division of Intramural Research Board of Scientific Counselors reviews research conducted at NHGRI. …