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Policy Issues
The Genome Statute and Legislation Database is comprised of state statutes and bills introduced during U.S. state legislative sessions.
About Genomics
NHGRI considers the ethical, legal and social aspect of genomics research in our work, including these key policy issues
The Informed Consent Resource
Explore genomics-relevant considerations for informed consent and guidance on how to approach them.
Event
NSIGHT explores the implications, challenges and opportunities associated with the possible use of genomic sequence information during the newborn period.
Policy Issues
Participating in genomics research is an opportunity to support exploration of the genome and help scientists understand, prevent, detect and treat disease.
Policy Issues
Participar en una investigación genómica es una oportunidad para apoyar la exploración científica del genoma.
Policy Issues
Es esencial que los derechos e intereses de los participantes se respeten durante todo el proceso de la investigación.
Policy Issues
Informed consent shows respect for personal autonomy and is an important ethical requirement in research.
Data Sharing
The NHGRI Data Sharing Governance Committee is responsible for the activities necessary for the Institute to implement and maintain NIH and NHGRI data sharing policies.
Policies and Guidance
This page provides an overview of Resource Sharing Plans, a required document in most NIH funding applications. Most applicants for NIH funding must provide a Resource Sharing Plan (RSP) documenting plans for sharing resources that result from their federally funded work. NIH Policies that govern the sharing of resources include the NIH Model Organism Sharing Policy and the NIH Research Tools Policy.