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The Informed Consent Resource
Explore genomics-relevant considerations for informed consent and guidance on how to approach them.
Event
NHGRI workshop seeking scientific perspectives for relating genomic variation to human phenotype.
Event
Identifying the ELSI challenges raised by Citizen Science in the context of biomedical research and identify ways for the NIH to address these ELSI issues.
Policy Issues
Participating in genomics research is an opportunity to support exploration of the genome and help scientists understand, prevent, detect and treat disease.
Policy Issues
Participar en una investigación genómica es una oportunidad para apoyar la exploración científica del genoma.
Policy Issues
Es esencial que los derechos e intereses de los participantes se respeten durante todo el proceso de la investigación.
Event
On April 5, 2024, The Inter-Society Coordinating Committee for Practitioner Education in Genomics (ISCC-PEG) will hold its 13th annual meeting.
Policy Issues
Informed consent shows respect for personal autonomy and is an important ethical requirement in research.
Data Sharing
The NHGRI Data Sharing Governance Committee is responsible for the activities necessary for the Institute to implement and maintain NIH and NHGRI data sharing policies.
Event
The purpose of this semi-annual lecture series is to bring distinguished researchers whose work sits at the interaction of genomics and the social and behavioral sciences to speak to the NIH community.