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Policy Issues

The Genome Statute and Legislation Database is comprised of state statutes and bills introduced during U.S. state legislative sessions.

Policy Issues

Glossary of Statutory, Legislative and Regulatory Terms

This glossary contains definitions for commonly used terms (such as "bill", "statute", "regulation" and more) found in the Genome Statue and Legislative Database.

Policy Issues

Participating in Genomics Research

Participating in genomics research is an opportunity to support exploration of the genome and help scientists understand, prevent, detect and treat disease.

Policy Issues

Participación en una investigación genómica

Participar en una investigación genómica es una oportunidad para apoyar la exploración científica del genoma.

Policy Issues

Consentimiento informado para la investigación genómica

Es esencial que los derechos e intereses de los participantes se respeten durante todo el proceso de la investigación.

The Informed Consent Resource

Special Considerations for Genomics Research

Explore genomics-relevant considerations for informed consent and guidance on how to approach them.

Event

Ethical, Legal and Social Implications of Citizen Science

Identifying the ELSI challenges raised by Citizen Science in the context of biomedical research and identify ways for the NIH to address these ELSI issues.

Policy Issues

Regulación de pruebas genéticas

Las pruebas genéticas se están convirtiendo en algo más común en la práctica clínica.

Policy Issues

Regulation of Genetic Tests

Most genetic tests today are not regulated, meaning that they go to market without any independent analysis to verify the claims of the seller.

Policy Issues

Privacidad en la genómica

Hay leyes y políticas que sirven para proteger la privacidad de la información genómica de un individuo.