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Policy Issues

Informed consent shows respect for personal autonomy and is an important ethical requirement in research.

Data Sharing

The NHGRI Data Sharing Governance Committee is responsible for the activities necessary for the Institute to implement and maintain NIH and NHGRI data sharing policies.

Policies and Guidance

NHGRI Guidance on Writing a Resource Sharing Plan

This page provides an overview of Resource Sharing Plans, a required document in most NIH funding applications. Most applicants for NIH funding must provide a Resource Sharing Plan (RSP) documenting plans for sharing resources that result from their federally funded work. NIH Policies that govern the sharing of resources include the NIH Model Organism Sharing Policy and the NIH Research Tools Policy.

Event

Pre-application Webinar: Informatics Tools for the Pangenome NOFOs

On January 8, 2025 at 2:00 PM ET, NHGRI held a pre-application webinar about the Informatics Tools for the Pangenome Notices of Funding Opportunity (NOFOs) for potential applicants: RFA-HG-25-007, PAR-25-308 and PAR-25-309.

Explainer

Use of Population Descriptors in Genomics

Appropriate use of population descriptors in research is a critical scientific issue that is important for advancing genomic science and improving healthcare across human populations.

Policies and Guidance

Data Sharing Policies and Expectations

A webpage with information and associated FAQs that describe various expectations for data sharing that are specific to NHGRI-supported studies.