Search Results

Facet (Page)

Content Formats

11 - 20 of 29

Policy Issues

The Genome Statute and Legislation Database is comprised of state statutes and bills introduced during U.S. state legislative sessions.

… at the University of Minnesota and Vanderbilt University Medical Center, this database allows users to search federal … Building a Sound Legal Foundation for Translating Genomics into Clinical Application” (grant #: R01HG008605 ; …

Explainer

Use of Population Descriptors in Genomics

Appropriate use of population descriptors in research is a critical scientific issue that is important for advancing genomic science and improving healthcare across human populations.

… and to advance the use of population descriptors in genomics and biomedical research. The National Academies of … participants how they identify, looking in an electronic medical record, using data from a prior research study that … race or ethnicity change a doctor’s decision about medical treatment? The answer can depend on a variety of …

Policy Issues

What’s Happening in Genome Editing Right Now?

Scientific institutions are developing recommendations to support the responsible use of human gene-editing research.

… 1 , 2 Because CRISPR is an important tool for basic genomics research, NHGRI currently conducts and funds …

Policy Issues

Investigative Genomics

Genetic information is used by law enforcement to investigate criminal acts and exonerate those who have been convicted of crimes they did not commit.

… scene) profile into publicly available open-data, personal genomics DNA databases or private companies that offer IGG … … Explore This Page … Related Content … Investigative Genomics … Genetic information is used by law enforcement to …

Policy Issues

Intellectual Property in Genomics

In June 2013, the Supreme Court determined that DNA in its natural form cannot be patented.

… of open access to the genome has been a core ethos of genomics ever since. Over the years that this debate has … … The Courts and Gene Patents … Intellectual Property in Genomics … In June 2013, the Supreme Court determined that …

The Informed Consent Resource

Required Elements of the Consent Form

Explore the basic elements of informed consent that are required by the Common Rule and that are relevant to genomics.

… Rule (45 CFR 46, Subpart A) and that are relevant to genomics. It also provides sample language that can be used … researchers will have access to a research participant's medical records and, if so, who and through what process … one-time versus ongoing collection of information from medical records). What DNA sequence or other experimental …

Policy Issues

Synthetic Biology

Synthetic biology is a field of science that involves redesigning organisms for useful purposes by engineering them to have new abilities.

Policy Issues

Coverage and Reimbursement of Genetic Tests

Payers such as insurance companies and Medicare need systematic ways of evaluating genetic tests for reimbursement.

… Terminology (CPT) codes developed by the American Medical Association, and fewer than 200 CPT codes exist for …

Policy Issues

Glossary of Statutory, Legislative and Regulatory Terms

This glossary contains definitions for commonly used terms (such as "bill", "statute", "regulation" and more) found in the Genome Statue and Legislative Database.

Policy Issues

Regulación de pruebas genéticas

Las pruebas genéticas se están convirtiendo en algo más común en la práctica clínica.

… la Ley de la Genómica y la Medicina Personalizada ( Genomics and Personalized Medicine Act ), con disposiciones …