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Policy Issues

What are the Ethical Concerns of Genome Editing?

Most ethical discussions about genome editing center on human germline editing because changes are passed down to future generations.

… is deemed safe through research, it should not be used for clinical reproductive purposes; the risk cannot be justified …

Policy Issues

Genome Statute and Legislation Database

The Genome Statute and Legislation Database is comprised of state statutes and bills introduced during U.S. state legislative sessions.

… a Sound Legal Foundation for Translating Genomics into Clinical Application” (grant #: R01HG008605 ; Susan M. …

Policy Issues

Intellectual Property in Genomics

In June 2013, the Supreme Court determined that DNA in its natural form cannot be patented.

… research, and the translation of research discoveries to clinical applications. Indeed, one of the early principles … music. In April 2010 the Secretary's Advisory Committee on Genetics, Health and Society published a report, Gene … coalition of other groups, filed a lawsuit against Myriad Genetics, the USPTO, and the University of Utah Research …

Policy Issues

Informed Consent

Informed consent shows respect for personal autonomy and is an important ethical requirement in research.

Policy Issues

What is genome editing?

Genome editing is a method that lets scientists change the DNA of many organisms, including plants, bacteria, and animals.

Policy Issues

How Does Genome Editing Work?

Scientists have edited genomes for many years, but CRISPR technology has improved the speed, cost, accuracy, and efficiency of genome editing