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Policy Issues

The Genome Statute and Legislation Database is comprised of state statutes and bills introduced during U.S. state legislative sessions.

… team keeps this database up to date. National Society of Genetic Counselors To find information about state genetic counselor licensing laws, visit the National Society of Genetic Counselors’ website. NHGRI’s Genome Statute and …

Policy Issues

How is Genome Editing Used?

Genome editing is currently being applied to research on cancer, mental health, rare diseases, and many other disease areas.

… for disease. Many diseases from cancer to asthma have genetic bases. Through the application of genome editing … possibility that germline therapies would pave the way for genetic enhancement, the use of genome editing to change … Scientists are also working to learn more about how genetic changes and environmental influences combine to …

Policy Issues

Informed Consent

Informed consent shows respect for personal autonomy and is an important ethical requirement in research.

… storage and use of data. It may be useful to involve genetic counselors in the informed consent process, either … It is important to draw a distinction between targeted genetic research and broader genome sequencing, so that … the scope of data generation. As with any study involving genetic or genomic analyses, the informed consent process for …

Policy Issues

What are the Ethical Concerns of Genome Editing?

Most ethical discussions about genome editing center on human germline editing because changes are passed down to future generations.

… that of existing technologies, such as preimplantation genetic diagnosis (PGD) and in-vitro fertilization (IVF) . … once proved safe and effective, should be allowed to cure genetic disease (and indeed, that it is a moral imperative). … on Genome Editing Technologies and Human Germline Genetic Modification. Retrieved from …

Policy Issues

What is genome editing?

Genome editing is a method that lets scientists change the DNA of many organisms, including plants, bacteria, and animals.

Policy Issues

How Does Genome Editing Work?

Scientists have edited genomes for many years, but CRISPR technology has improved the speed, cost, accuracy, and efficiency of genome editing

… recombination is the exchange (recombination) of genetic information between two similar (homologous) strands …

Policy Issues

What’s Happening in Genome Editing Right Now?

Scientific institutions are developing recommendations to support the responsible use of human gene-editing research.

… mice with specific gene alterations for the study of human genetic diseases. Many NHGRI researchers take advantage of …