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Patients with genetic disorders and members of the public have diverse about germline genome editing.
… Patients with genetic disorders and members of the public, both in the United … genome editing should be used to prevent or treat genetic disorders. … Patients, patient advocates, and families of patients with genetic disorders have diverse views on whether germline genome …
The Informed Consent Resource
Explore genomics-relevant considerations for informed consent and guidance on how to approach them.
… (for example heart disease, cancer, or psychiatric disorders), development of new scientific methods, or the … tell you only information directly related to diseases and disorders that affect children. Your child can request … information when he or she is 18. … Some developmental disorders and degenerative disorders that affect children and …
Policy Issues
In 2008, the Genetic Information Nondiscrimination Act was passed into law, prohibiting discrimination by employers and health insurers.
… for information about the manifestation of disease or disorders in spouses. Some argue that EEOC's ruling conflicts … genetic information relating to illness, disease, or other disorders is prohibited by the ADA. In a subsequent Senate …
The Informed Consent Resource
Explore the basic elements of informed consent that are required by the Common Rule and that are relevant to genomics.
… learn that you have risk factors for certain diseases and disorders, and you may learn that you are at low risk for other diseases and disorders. Through participation in this study, you may …
Policy Issues
Most ethical discussions about genome editing center on human germline editing because changes are passed down to future generations.
… would be expected to have the disease); cases of polygenic disorders, which are influenced by more than one gene; and …