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- Developmental Genotype-Tissue Expression (dGTEx)1
- Multi-Omics for Health and Disease (Multi-Omics)1
- Ethical, Legal and Social Implications (ELSI) Research Program2
- Genomics-Enabled Learning Health Systems (gLHS)1
- Genetic Architecture of Complex Traits1
- Genome Technology Program1
- Impact of Genomic Variation on Function (IGVF) Consortium1
- Clinical Genome (ClinGen) Resource1
- Polygenic RIsk MEthods in Diverse populations (PRIMED) Consortium1
- Genomics Research to Elucidate the Genetics of Rare Diseases (GREGOR) Consortium2
Policy Issues
Most genetic tests today are not regulated, meaning that they go to market without any independent analysis to verify the claims of the seller.
… As the field of genomics advances, genetic and genomic tests are becoming … In Vitro Diagnostics Used for Diagnosing Germline Diseases … The FTC’s primary mission is to enforce Section 5 …
Policy Issues
Payers such as insurance companies and Medicare need systematic ways of evaluating genetic tests for reimbursement.
… For patients to have full access to the benefits of genetic testing, payers such as insurance …
Policy Issues
In 2008, the Genetic Information Nondiscrimination Act was passed into law, prohibiting discrimination by employers and health insurers.
… wonder if participating in genetics research or undergoing genetic testing will lead to being discriminated against … to participate in the research needed for the development of new tests, therapies, and cures. This page provides an … from discriminating against patients with genetic diseases by refusing coverage because of 'pre-existing …
Policy Issues
Patients with genetic disorders and members of the public have diverse about germline genome editing.
… Patients with genetic disorders and members of the public, both in the United States and around the … it should be used to prevent people from getting genetic diseases, especially ones that do not currently have …
Policy Issues
Genome editing is currently being applied to research on cancer, mental health, rare diseases, and many other disease areas.
… being applied to research on cancer, mental health, rare diseases, and many other disease areas. … Basic research … gene therapy has grown tremendously since the discovery of CRISPR, the vast majority of work undertaken by scientists … for disease. Many diseases from cancer to asthma have genetic bases. Through the application of genome editing …
Policy Issues
Participating in genomics research is an opportunity to support exploration of the genome and help scientists understand, prevent, detect and treat disease.
… is an opportunity to support scientific exploration of the genome and to help NIH in its mission to understand, … In addition to taking steps to protect the privacy of your genetic information, there is a Federal law called the … Clinical Center hosts a wide range of studies from rare diseases to chronic health conditions, as well as studies for …
Policy Issues
The Genome Statute and Legislation Database is comprised of state statutes and bills introduced during U.S. state legislative sessions.
… The Genome Statute and Legislation Database is comprised of … team keeps this database up to date. National Society of Genetic Counselors To find information about state genetic …
Policy Issues
The 9 steps a bill can go through before becoming a law, using the Genetic Information Non-Discrimination Act of 2003 as an example.
… are 9 steps a bill can go through before becoming a law. The history of the Genetic Information Nondiscrimination Act  (GINA), a law that …
Policy Issues
Genetic information is used by law enforcement to investigate criminal acts and exonerate those who have been convicted of crimes they did not commit.
… Technological advances have made genetic and genomic tools faster, cheaper and more compatible … is used by law enforcement to investigate criminal acts. The legal system also uses genetic information to exonerate those who have been convicted of crimes they did not commit. This page provides information …
Policy Issues
Synthetic biology is a field of science that involves redesigning organisms for useful purposes by engineering them to have new abilities.
… Synthetic biology is a field of science that involves redesigning organisms for useful … greatly increases a child's risk of death from infectious diseases. Yeast engineered to produce rose oil  as an … editing " because both involve changing an organism's genetic code; however, some people draw a distinction between …