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1 - 10 of 29 for “medical genomics” for “medical genomics”

About Genomics

NHGRI considers the ethical, legal and social aspect of genomics research in our work, including these key policy issues

… NHGRI is committed to driving the responsible use of genomics in society in order to advance knowledge and ensure that genomics benefits the health of all humans. To do this, we consider the ethical, legal, and social aspect of genomics research in our work, including these key issues. … …

Policy Issues

What is genome editing?

Genome editing is a method that lets scientists change the DNA of many organisms, including plants, bacteria, and animals.

Policy Issues

How Does Genome Editing Work?

Scientists have edited genomes for many years, but CRISPR technology has improved the speed, cost, accuracy, and efficiency of genome editing

… creating targeted mutations to the genome. 5 Large-scale genomics projects that once took many years and tens of …

Policy Issues

Genome Statute and Legislation Database OLD

The Genome Statute and Legislation Database is comprised of state statutes and bills introduced during U.S. state legislative sessions.

… sessions. … NHGRI's Table of State Statutes Related to Genomics provides the total number of states that have … at the University of Minnesota and Vanderbilt University Medical Center, this database allows users to search federal … Building a Sound Legal Foundation for Translating Genomics into Clinical Application” (grant #: R01HG008605 ; …

Policy Issues

How is Genome Editing Used?

Genome editing is currently being applied to research on cancer, mental health, rare diseases, and many other disease areas.

Policy Issues

What are the Ethical Concerns of Genome Editing?

Most ethical discussions about genome editing center on human germline editing because changes are passed down to future generations.

… the approaches, objectives and global society. Brief Funct Genomics, 16(1), 46-56. doi:10.1093/bfgp/elv053 [8] Park, A. …

Policy Issues

Privacy in Genomics

There are laws and policies that serve to protect the privacy of individuals' genomic information.

… debate whether we need further measures. … When conducting genomics research, two essential values of scientific … Use of Clinical Samples in Research Specimens collected in medical settings, like blood and tissue taken during … patient privacy by restricting the sharing of patients’ medical information. … Genomics in Law Enforcement Genetic …

Policy Issues

What do People Think About Genome Editing?

Patients with genetic disorders and members of the public have diverse about germline genome editing.

… be crossed" and that there are not currently "compelling medical applications justifying the use of CRISPR/Cas9 in …

Policy Issues

Participating in Genomics Research

Participating in genomics research is an opportunity to support exploration of the genome and help scientists understand, prevent, detect and treat disease.

… Participating in genomics research is an opportunity to support scientific … consideration that is especially important to consider for genomics research since genomic information is hereditary and … Accountability Act (HIPAA) that restricts the sharing of medical information unless you have provided consent. Might I …

The Informed Consent Resource

Special Considerations for Genomics Research

Explore genomics-relevant considerations for informed consent and guidance on how to approach them.

… This webpage discusses genomics-relevant considerations for informed consent and … include: Use of the samples and data is limited to health/medical/biomedical purposes; does not include the study of … samples or follow-up information about your health or medical care? Yes No … Family perspectives are an important …