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Event
On December 11, 2023, NHGRI, in collaboration with several other NIH Institutes and Offices, recently renewed the three Notices of Funding Opportunity (NOFOs) used to support investigator-initiated research on the ethical, legal and social implications (ELSI) of human genome research.
Event
NSIGHT explores the implications, challenges and opportunities associated with the possible use of genomic sequence information during the newborn period.
… associated with the possible use of genomic sequence information during the newborn period. The NSIGHT program … associated with the possible use of genomic sequence information during the newborn period. … NSIGHT explores the … associated with the possible use of genomic sequence information during the newborn period. … Event …
Event
On February 16, 2023, the National Human Genome Research Institute (NHGRI) held a follow-up working group consultation after the 14th Genomic Medicine meeting, Genomic Medicine XIV: Genomic Learning Healthcare Systems.
… the All of Us Research Program) MD and GC will provide information about local resources available for clinical … MCED in the clinic as an emerging precision medicine technology.   We did trial an e consult service in EPIC but … “learning community of practice” listserv to provide information and updates, potentially supplemented with a …
Event
On January 25, 2023, the National Human Genome Research Institute will hold a roundtable on social and behavioral genomics.
… Moderator: Ashley Smart, Massachusetts Institute of Technology Daniel Benjamin, University of California, Los … the public. Follow #NHGRIevents on social media for more information.   Agenda Biographies Additional Resources …
Event
On May 23, 2023, NHGRI will host a webinar: ELSI Research and the New NIH Data Management and Sharing (DMS) Policy.
FAQ
Frequently asked questions from the September 23, 2024 pre-application webinar the NHGRI ELSI Program hosted.
… in the planning and implementation of conferences. … What information is required to obtain the permission-to-submit … at lockhani@mail.nih.gov by 10/8/24 with the following information to receive a permission-to-submit letter:   Name … (1 paragraph or less) of the conference   Once this information is received, Nicole Lockhart or a designee from …
Event
The NHGRI Ethical, Legal and Social Implications (ELSI) Research Program will host the Pre-Application Webinar for the Building Partnerships and Broadening Perspectives to Advance ELSI Research (BBAER) Program - New Limited Competition for Resource Limited Institutions on August 28, 2024.
… , key application requirements, and eligibility information.  … Virtual … BBAER Pre-Application Webinar … The …
Event
NHGRI and NICHD program staff will hold a pre-application interactive Q&A webinar for the Developmental Genotype-Tissue Expression Project funding opportunities and answer questions from prospective applicants.
… have a set of questions that should be asked? The more information that is collected, the better. In the Research … you further clarify what is required? All the information from the BPC regarding tissue samples will be … will be broadly shared without any identifying subject information with the biomedical community.” To recap, tissue …
Event
A 10-part seminar series in 2021 that focuses on the “Bold Predictions for Human Genomics by 2030” that are described in NHGRI’s “Strategic Vision for Improving Human Health at the Forefront of Genomics.”
… analyses of genome sequences and associated phenotypic information for millions of human participants will be … 4:30 p.m. Bold Prediction #6: The regular use of genomic information will have transitioned from boutique to …
Event
Several NIH Institutes, Offices and Centers partnered to host a two-day virtual workshop on May 28-29, 2024, to further explore the recommendations from the National Academies of Sciences, Engineering and Medicine (NASEM) 2023 report, Using Population Descriptors in Genetics and Genomics Research: A New Framework for an Evolving Field, with regards to legacy genomic data. 
… for future research or collaboration. For more information, please contact: Lucia Hindorff ( …