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Event
On December 11, 2023, NHGRI, in collaboration with several other NIH Institutes and Offices, recently renewed the three Notices of Funding Opportunity (NOFOs) used to support investigator-initiated research on the ethical, legal and social implications (ELSI) of human genome research.
Virtual Exhibit
The Human Genome Project changed traditional understandings of how and why scientific research is conducted. It was, however, not without its detractors. Early in 1990, there was an effort to stop funding for the nascent Human Genome Project, in the form of a letter writing campaign.
… endless lines of letters with “no interesting biological information.” According to the Coleman, the project “wouldn’t … and that are being actively investigated today.   For more information on what we now refer to as “non-coding DNA,” … (as outlined in the  Bermuda Principles ) of the genomic information generated. This kind of policy was made possible …
Event
On May 23, 2023, NHGRI will host a webinar: ELSI Research and the New NIH Data Management and Sharing (DMS) Policy.
FAQ
Frequently asked questions from the September 23, 2024 pre-application webinar the NHGRI ELSI Program hosted.
… in the planning and implementation of conferences. … What information is required to obtain the permission-to-submit … at lockhani@mail.nih.gov by 10/8/24 with the following information to receive a permission-to-submit letter:   Name … (1 paragraph or less) of the conference   Once this information is received, Nicole Lockhart or a designee from …
Event
The NHGRI Ethical, Legal and Social Implications (ELSI) Research Program will host the Pre-Application Webinar for the Building Partnerships and Broadening Perspectives to Advance ELSI Research (BBAER) Program - New Limited Competition for Resource Limited Institutions on August 28, 2024.
… , key application requirements, and eligibility information.  … Virtual … BBAER Pre-Application Webinar … The …
Virtual Exhibit
The Gene Sweepstakes — or GeneSweep as it became popularly known — was a three-year-long, sweepstakes-style contest organized by British bioinformatician Ewan Birney, Ph.D., of the European Bioinformatics Institute. Scientists participated in the contest by betting on the total number of protein-coding genes that would be identified in the human genome sequence generated by the Human Genome Project.
… website thus became a key place to get the most up-to-date information about the collection of identified human genomes. …
Event
Several NIH Institutes, Offices and Centers partnered to host a two-day virtual workshop on May 28-29, 2024, to further explore the recommendations from the National Academies of Sciences, Engineering and Medicine (NASEM) 2023 report, Using Population Descriptors in Genetics and Genomics Research: A New Framework for an Evolving Field, with regards to legacy genomic data. 
… for future research or collaboration. For more information, please contact: Lucia Hindorff ( …