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- Developmental Genotype-Tissue Expression (dGTEx)1
- Multi-Omics for Health and Disease (Multi-Omics)1
- Ethical, Legal and Social Implications (ELSI) Research Program6
- Genomics-Enabled Learning Health Systems (gLHS)2
- Genetic Architecture of Complex Traits1
- Genome Technology Program5
- Enhancing Opportunities in Computational Genomics and Data Science1
- Human Genome Reference Program (HGRP)2
- Impact of Genomic Variation on Function (IGVF) Consortium3
- Advancing Genomic Medicine Research (AGMR)1
- Encyclopedia of DNA Elements (ENCODE) Project1
- Molecular Phenotypes of Null Alleles in Cells (MorPhiC)1
- Clinical Genome (ClinGen) Resource1
- Genomic Innovator Awards2
- Polygenic RIsk MEthods in Diverse populations (PRIMED) Consortium1
- NHGRI Genomic Data Science Analysis, Visualization and Informatics Lab-space (AnVIL)2
- Genomics Research to Elucidate the Genetics of Rare Diseases (GREGOR) Consortium2
Event
Several NIH Institutes, Offices and Centers partnered to host a two-day virtual workshop on May 28-29, 2024, to further explore the recommendations from the National Academies of Sciences, Engineering and Medicine (NASEM) 2023 report, Using Population Descriptors in Genetics and Genomics Research: A New Framework for an Evolving Field, with regards to legacy genomic data. 
… and consider how they relate to the ongoing use of legacy data;  Summarize current approaches to the use of population descriptors in/for legacy data;   Define … Research Program National Cancer Institute National Human Genome Research Institute National Institute on Aging …
Event
NHGRI currently sponsors a biennial meeting to bring together those with an interest in the ELSI of genomic research, known as the ELSI Congress.
… (ELSI) Research Program has supported a large body of empirical, analytical and conceptual research to … and address the ethical, legal, and social implications of genomics. ELSI research addresses the new and sometimes … unexpected ways that genomics interacts with many aspects of daily life, from how healthcare is designed and delivered …
Event
On December 11, 2023, NHGRI, in collaboration with several other NIH Institutes and Offices, recently renewed the three Notices of Funding Opportunity (NOFOs) used to support investigator-initiated research on the ethical, legal and social implications (ELSI) of human genome research.
… may have about the NOFOs to Zo.Bly@nih.gov . A recording of the webinar and a list of questions and answers have been made available. … Questions … The National Human Genome Research Institute, in collaboration with several …
FAQ
Frequently asked questions from the September 23, 2024 pre-application webinar the NHGRI ELSI Program hosted.
… in May 2025. An award will be made during the summer of 2025. The first meeting organized under this award should occur during the first year of the project. If the first conference was planned for spring or summer of 2026, then planning could start as soon as the award was …
Event
The NHGRI Ethical, Legal and Social Implications (ELSI) Research Program will host the Pre-Application Webinar for the Building Partnerships and Broadening Perspectives to Advance ELSI Research (BBAER) Program - New Limited Competition for Resource Limited Institutions on August 28, 2024.
… Research (BBAER) Program ( RFA-HG-24-026 ). The purpose of the BBAER Program was to broaden the types of knowledge, skills, expertise, experience, and perspectives … the ethical, legal, and social implications (ELSI) of advances in human genetics or genomics. The program …
Event
On May 23, 2023, NHGRI will host a webinar: ELSI Research and the New NIH Data Management and Sharing (DMS) Policy.
… The webinar will focus on the following topics: Overview of the NIH Data Sharing Management Policy Application of the DMS Policy to ELSI Research Data sharing templates and … … Webinar Links … Panelists/Speakers: … The National Human Genome Research Institute hosts an informational webinar, …