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- Ethical, Legal and Social Implications (ELSI) Research Program4
- Genomics-Enabled Learning Health Systems (gLHS)2
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- Impact of Genomic Variation on Function (IGVF) Consortium3
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News Release
The National Institutes of Health (NIH) Genomic Data Sharing Policy includes expectations for how researchers should obtain, share and access genomic data from human and non-human sources. As a leader in genomics, including relevant policy development and implementation, the National Human Genome Research Institute (NHGRI) encourages data sharing practices that go beyond the NIH expectations.
… Ph.D. … The National Institutes of Health (NIH) Genomic Data Sharing Policy includes expectations for how researchers should obtain, share and access genomic data from human and non-human sources. As a leader in …
News Release
NIH released a Request for Information seeking comments on the data submission and access process for dbGaP.
… Human Genome Research Institute, we believe that broadly sharing research data will result in maximum public benefit, and we're … committed to providing researchers with access to genomic data. The National Institutes of Health (NIH) Genomic Data …
News Release
Today, we are updating the way we manage data related to the NIH Genomic Data Sharing Policy.
… M.D., Ph.D. … Today, we are updating the way we manage data related to the NIH Genomic Data Sharing Policy to again allow unrestricted access to genomic …
Data Sharing Policies
Sample informed consent language, aligned with each of the informational elements of consent for genomic data sharing (GDS) outlined by NIH as important to convey, in language understandable to prospective participants.
… Elements Outlined by NIH Guidance  Genomic and phenotypic data, and any other data relevant for the study (such as exposure or disease … encourages the broadest appropriate future use and sharing of genomic and phenotypic data.  Example 1: Consent …
Research at NHGRI
Families Sharing Health Assessment and Risk Evaluation (SHARE) helps you and your family learn how your family health history affects your risk for diseases.
… Disease Worksheets … Families SHARE Workbooks … Families Sharing Health Assessment and Risk Evaluation (SHARE) helps … diseases. … Families SHARE … Families SHARE … Families Sharing Health Assessment and Risk Evaluation (SHARE) helps … health history affects your risk for diseases. … Families Sharing Health Assessment and Risk Evaluation (SHARE) helps …
About NHGRI
The Genomic Data Science Working Group facilitates engagement of the National Advisory Council for Human Genome Research on genomics and data science issues.
… The NHGRI Genomic Data Science Working Group facilitates a deeper engagement of … on complex issues at the interface between genomics and data science. … The NHGRI Genomic Data Science Working Group was created in 2017 as a …
Staff
Elena Ghanaim is the Policy Advisor for Data Science and Sharing within the Office of Genomic Data Science (OGDS) at the National Human Genome Research Institute (NHGRI)
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… Elena Ghanaim is the Policy Advisor for Data Science and Sharing within the Office of Genomic Data Science (OGDS) at the National Human Genome Research …
About NHGRI
A list of policies and guidance related to funding, genomic data sharing, website operations and our work environment at the National Human Genome Research Institute.
… A list of policies and guidance related to funding, genomic data sharing, website operations and our work environment at the … list of policies and guidance related to funding, genomic data sharing, website operations and our work environment at …
Policies and Guidance
This page provides an overview of Resource Sharing Plans, a required document in most NIH funding applications. Most applicants for NIH funding must provide a Resource Sharing Plan (RSP) documenting plans for sharing resources that result from their federally funded work. NIH Policies that govern the sharing of resources include the NIH Model Organism Sharing Policy and the NIH Research Tools Policy.
… What types of resources should be addressed in a Resource Sharing Plan?  Please review the NIH webpage on the Research … laboratory equipment and machines)  Protocols (e.g.,data collection instruments, consent materials, laboratory … code)  Please note that resources do not include data and there is a separate set of NIH policies regarding …
Office of Genomic Data Science
NHGRI is committed to increase the availability of educational and research opportunities in computational genomics and data science (CGDS).
… and research opportunities in computational genomics and data science (CGDS). Through recent funding announcements for … in CGDS and facilitate the development of a diverse data science and genomics workforce. For CGDS educational … tools, and services available on NHGRI's Genomic Data Science Analysis, Visualization, and Informatics …