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News Release
NHGRI researchers asked patients, parents and physicians in the sickle cell disease community (SCD) what they wanted and needed to know about genome editing to make informed decisions about participating in genome-editing clinical trials.
… that are consistent with a person’s values,” said Sara Hull, Ph.D., director of the Bioethics Core at NHGRI. “By …
Data Sharing
The NHGRI Data Sharing Governance Committee is responsible for the activities necessary for the Institute to implement and maintain NIH and NHGRI data sharing policies.
… M.D. Division of Intramural Research … Permanent Members Sara C. Hull, Ph.D. (IRB) NHGRI Bioethics Core Executive Secretary …
Event
As a way to engage with members of the public who want to know more about particular genomics topics, NHGRI director Eric Green, M.D., Ph.D. answers questions on Twitter using the hashtag #AskDrGenome and invites a special guest from NHGRI to join him.
… to join him. Past guests have included Les Biesecker, Sara Hull, Ben Solomon, Vence Bonham, Adam Phillippy and Arang …
Event
NHGRI will host a two-day symposium, on December 2-3, 2021, examining the history of eugenics and scientific racism and their complex legacies in the modern health sciences.
… Slides 11:15 - 11:45 a.m. Discussion/Q&A Moderator: Sara Hull (NHGRI) 11:45 a.m. - 1:00 p.m. Lunch 1:00 - 1:30 p.m. …
News Release
Small businesses with NHGRI grants were instrumental in contributing to the completion of the human genome sequence, redefining the future of genomics.
… to be studied. “This is the power of genomics,” said Sara Hull, Ph.D., director of NHGRI’s Bioethics Core. “By studying …
Staff
Dr. Leslie Biesecker is a clinical and molecular geneticist in and the chief of NHGRI's Center for Precision Health Research.
… K, Gahl W, Goldman D, Grady C, Greene MH, Holland SM, Chandros Hull S, Porter FD, Resnick D, Rubinstein W, Biesecker LG. A …
Educational Resources
NHGRI participates in the South By Southwest (SXSW) conference to help increase genomic literacy.
… can be used as identity markers? Panelists: Vence Bonham, Sara Hull, Christina Daulton … Genomics has become such …
Outreach
15 examples of how genomics has and continues to transform our world in myriad ways.
… Hanson, Melinda Hutcheon, Chanda Jefferson, Kim Kaphingst, Sara Katsanis, Esther Kim, Neil Lamb, Joslynn Lee, Elissa …
The Genomics Landscape
In the September 3, 2020 edition of The Genomics Landscape, Dr. Eric Green talks about the Impact of Genomic Variation on Function (IGVF) Consortium, the 2020 Genomic Innovator Awards and more.
… learning” opportunities provided by NHGRI. Last month, Dr. Sara Hull (NHGRI Bioethics Core Director) and I answered questions …
Event
On February 16, 2023, the National Human Genome Research Institute (NHGRI) held a follow-up working group consultation after the 14th Genomic Medicine meeting, Genomic Medicine XIV: Genomic Learning Healthcare Systems.
… System Rizwan Hamid Vanderbilt Children's Hospital Leland Hull Massachusetts General Hospital/Broad Institute Muin …