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The Genomics Landscape
In the October 2019 edition of The Genomics Landscape, NHGRI Director Eric Green focuses on recent efforts to make the human genome reference sequence useful to basic and clinical researchers and how increasing the representation of human genomic variation will remain key components of NHGRI’s Human Genome Reference Program.
… and Future of ELSI Research” at the American Society of Bioethics and Humanities Annual Meeting on Oct. 25, 2019, and …
News Release
NHGRI has selected Sara Chandros Hull, Ph.D., and Shawn Burgess, Ph.D., as deputy scientific directors of NHGRI’s Intramural Research Program.
… Ph.D. “With Sara’s extensive expertise and research in bioethics and program administration skills, and Shawn’s … well. With Sara’s extensive expertise and research in bioethics and program administration skills, and Shawn’s … of Scientific Core Facilities; director of the NHGRI Bioethics Core; and chair of the NIH Intramural Institutional …
News Release
A study published NIH researchers revealed that about half of individuals who said they don’t want to receive secondary genomic findings changed their mind after their healthcare provider gave them more detailed information.
… of genome sequencing in clinical care, researchers and the bioethics community are considering options for how to … Berkman, J.D., M.P.H., deputy director of the NHGRI Bioethics Core and senior author on the study. The research … said Berkman. Researchers at the NIH Department of Bioethics, NIEHS, Harvard University and Social & Scientific …
The Genomics Landscape
In the September 3, 2020 edition of The Genomics Landscape, Dr. Eric Green talks about the Impact of Genomic Variation on Function (IGVF) Consortium, the 2020 Genomic Innovator Awards and more.
… provided by NHGRI. Last month, Dr. Sara Hull (NHGRI Bioethics Core Director) and I answered questions about bioethics and genomics research on Twitter as part of …
Professional Development Programs
GCTP faculty instructors.
… of Health Policy and Management, Berman Institute of Bioethics Johns Hopkins Bloomberg School of Public Health … Director for Science Programs Berman Institute of Bioethics Johns Hopkins Bloomberg School of Public Health …
About NHGRI
The Genomics and Society Working Group advises on planning and priorities for genomics and society activities at NHGRI.
The Genomics Landscape
In the January 2019 edition of The Genomics Landscape, NHGRI Director Dr. Eric Green honors NIAMS Director, Stephen Katz, M.D., Ph.D.
… Strategic Planning session held at the American Society of Bioethics and Humanities meeting in October 2018 is now …
News Release
A simple blood draw is replacing a giant needle to the belly for testing their fetuses for a range of genetic disorders.
… Benjamin Berkman, J.D., M.P.H., deputy director of NHGRI's Bioethics Core and faculty member in the NIH Department of Bioethics. "Our goal was to see how prepared OB/GYNs are for …
News Release
NHGRI researchers collaborated with physicians and medical geneticists worldwide to create the Atlas of Human Malformation Syndromes in Diverse Populations.
… the team requested an ethics consultation from the NHGRI Bioethics Core. Based on this input, health care providers … risks," said Sara C. Hull, Ph.D., director of the NHGRI Bioethics Core . "We wanted to weigh carefully those risks in …
Policy Issues
Synthetic biology is a field of science that involves redesigning organisms for useful purposes by engineering them to have new abilities.
… in order to answer these questions. Leading voices in bioethics, including the Presidential Commission for the …