Search Results
Outreach
The DNA Day Starter Kit contains all of the materials you need to plan your classroom or community event.
… of the materials you need to plan the perfect classroom or community event. Download the entire kit or just the … all of the materials you need to plan your classroom or community event. … The DNA Day Starter Kit contains all of … you need to plan your classroom or community event. … Outreach …
News Release
NHGRI researchers have released new educational materials to help the sickle cell disease community learn about gene therapies for the disease.
… New educational materials to help the sickle cell disease community learn about gene therapies for the disease are now … options. “These materials offer the sickle cell disease community information about what participating in a gene … The project seeks both to help the sickle cell disease community understand these new therapies and to facilitate …
Community Outreach
NHGRI is proud to help support the PBS documentary, “Ken Burns presents The Gene: An Intimate History,” based on the book by Siddhartha Mukherjee, M.D.
… media. It can be adapted to a variety of venues, including community centers, libraries, coffee shops, hospitals, … or researchers to serve as subject matter experts at community panels and screenings. By including these experts … on the book by Siddhartha Mukherjee, M.D. … Community Outreach …
Staff
Beth Tuck is the chief of the Education and Community Involvement Branch at NHGRI.
… … Beth Tuck (she/her) is the chief of the Education and Community Involvement Branch at NHGRI. Previously she was … of science education at Genspace, the world’s first community biology lab in Brooklyn, New York. As executive … She has also been invited to speak about Genspace and community biology at events like the Biofabricate Summit, the …
News Release
American Indians and Alaska Natives IRB training programs at NIH ensure the welfare of people participating in federally regulated research.
… focused on protecting the individual, but there were no community protections. We made sure that, on behalf of the tribes, the revisions addressed community protections, community needs and community benefits. We did this through …
Health
Information about genomics competencies, patient care, and related partnership and outreach activities at NHGRI.
… competencies, patient care, and our partnership and outreach activities. … Related Content … For Health … genomics competencies, patient care, and partnership and outreach activities at the National Human Genome Research … competencies, patient care, and related partnership and outreach activities at NHGRI. … Health …
Event
The Ethical Legal and Social Implications (ELSI) Research Program is hosting a webinar to gather specific feedback on four potential goals for the field of ELSI research over the next decade.
Clinical Research
MINI Section invites caregivers of children with mitochondrial disease to participate in a survey about the use of immune therapies in children with mitochondrial disease.
… is to understand how widespread these therapies are in the community, why some people are receiving them and how they … Use of Immunoglobulin Therapy in the Mitochondrial Disease Community … MINI Section invites caregivers of children with …
Outreach
A list of high quality educational activities to engage students on DNA Day.
… materials for use in a variety of education and outreach activities and environments. We hope these … gummy sweets in this fun, and edible, activity. Classroom Outreach Modules from North Carolina DNA Day Bring to life … topics in the classroom with modules designed for student outreach. Coloring with Cell Science Coloring Book Pages from …
News Release
Researchers explored patients', parents' and physicians' perspectives on the use of CRISPR-Cas9 gene-editing to reverse sickle cell disease.
… published December 24 in Genetics in Medicine . "Bringing community voices to the design and recruitment of upcoming … study couldn't come at a better time for the research community." In September, NIH's National Heart, Lung, and … were given an opportunity to share with the research community thoughts on how to move forward the research. …