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News Release
NHGRI researchers have released new educational materials to help the sickle cell disease community learn about gene therapies for the disease.
… New educational materials to help the sickle cell disease community learn about gene therapies for the disease are now … options. “These materials offer the sickle cell disease community information about what participating in a gene … The project seeks both to help the sickle cell disease community understand these new therapies and to facilitate …
Staff
Beth Tuck is the chief of the Education and Community Involvement Branch at NHGRI.
… … Beth Tuck (she/her) is the chief of the Education and Community Involvement Branch at NHGRI. Previously she was … of science education at Genspace, the world’s first community biology lab in Brooklyn, New York. As executive … She has also been invited to speak about Genspace and community biology at events like the Biofabricate Summit, the …
Community Outreach
NHGRI is proud to help support the PBS documentary, “Ken Burns presents The Gene: An Intimate History,” based on the book by Siddhartha Mukherjee, M.D.
… media. It can be adapted to a variety of venues, including community centers, libraries, coffee shops, hospitals, … or researchers to serve as subject matter experts at community panels and screenings. By including these experts … on the book by Siddhartha Mukherjee, M.D. … Community Outreach …
News Release
American Indians and Alaska Natives IRB training programs at NIH ensure the welfare of people participating in federally regulated research.
… focused on protecting the individual, but there were no community protections. We made sure that, on behalf of the tribes, the revisions addressed community protections, community needs and community benefits. We did this through …
Health
Information about genomics competencies, patient care, and related partnership and outreach activities at NHGRI.
… competencies, patient care, and our partnership and outreach activities. … Related Content … For Health … genomics competencies, patient care, and partnership and outreach activities at the National Human Genome Research … competencies, patient care, and related partnership and outreach activities at NHGRI. … Health …
Event
The Ethical Legal and Social Implications (ELSI) Research Program is hosting a webinar to gather specific feedback on four potential goals for the field of ELSI research over the next decade.
Outreach
Become an official member of the National DNA Day Network by planning and registering your event.
… and/or genomics. If you do not have an established outreach or education program, consider the following: a topical seminar, a community engagement event, a Science Café, an outreach program at a local school, setting up a Skype visit …
News Release
Researchers explored patients', parents' and physicians' perspectives on the use of CRISPR-Cas9 gene-editing to reverse sickle cell disease.
… published December 24 in Genetics in Medicine . "Bringing community voices to the design and recruitment of upcoming … study couldn't come at a better time for the research community." In September, NIH's National Heart, Lung, and … were given an opportunity to share with the research community thoughts on how to move forward the research. …
Outreach
A list of high quality educational activities to engage students on DNA Day.
… genetics and genomics concepts. Units will culminate in community-focused projects. High-quality professional … available in English and Spanish. Modules for Classroom Outreach from NC DNA Day North Carolina DNA Day Ambassador … Human Genome Research Institute's (NHGRI) Partnership for Community Outreach and Engagement in Genomics (PCOEG) offers …
Outreach
Frequently asked questions about National DNA Day - a unique day when students, teachers, and the public can learn more about genetics and genomics.
… professionals interested in participating in education and outreach. Reach out to a genetics professional in your area: ASHG Genetics Education Outreach Network NSGC Find a Genetic Counselor Database … the public can learn more about genetics and genomics. … Outreach …