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About NHGRI
The National Human Genome Research Institute is proposing a reorganization of the Division of Policy, Communications and Education.
… Institute is proposing a reorganization of the Division of Policy, Communications and Education . The proposed … aims to enhance synergies in the areas of bioethics, policy, education, engagement and communication. Notice of … and Comments … Proposed reorganization of the Division of Policy, Communications and Education … The National Human …
News Release
The Genetics and Public Policy and Genetics and Education Fellowships provide a pathway for scientists to pursue careers in science policy or education.
… curriculums can be established. … A Pathway to Science Policy and Education Careers One way to ensure that genomic discoveries in the lab drive policy and education for our benefit is to strengthen the … between genomic research and science education and policy. The National Human Genome Research Institute (NHGRI) …
Research Funding
Policies and guidance regarding research funding from the NHGRI and the National Institutes of Health.
… The National Institutes of Health (NIH) Grants Policy Statement is the definitive resource for grants policy. Those interested in applying for a specific grant … of Health. ​ … Human Genome Project, Research Funding, Genomics Research Funding, Funding Genetics Research, NIH …
News Release
NIH submits new policy that requires all NIH-funded investigators who conduct sensitive, health-related research be issued Certificates of Confidentiality.
… the National Institutes of Health (NIH) put forth a new policy which requires that all NIH-funded investigators who … studies collecting sensitive data; however, under the new policy, as of October 1, 2017, NIH-funded researchers and … research. Compliance with the requirements of the policy will become a term and condition of award for grant …
News Release
Cari Young and Julie Nadel join NHGRI as public policy and education fellows.
… history, and on a larger, evolutionary scale. … Advancing Genomics in Society As she moved forward through college and … to appreciate the potential broad impact of genetics and genomics. "I was attracted to the promise of genomics as it … Society of Human Genetics (ASHG)/NHGRI Genetics and Public Policy Fellow. She will spend her first four months with the …
Administrative
NHGRI branch responsible for policy development and analysis related to advances in genomics research.
… The Policy and Program Analysis Branch (PPAB) of the Division of Genomics and Society conducts policy development and analysis … to address policy matters related to human genetics and genomics. PPAB promotes policies that facilitate the uptake …
Policies and Guidance
Broad data sharing promotes maximum public benefit from federally funded genomics research. NHGRI supports the broadest appropriate genomic data sharing with timely data release through widely accessible data repositories. These repositories may be open access (unrestricted) or, if more appropriate, controlled access.
… promotes maximum public benefit from federally funded genomics research. NHGRI supports the broadest appropriate … primary study, if consistent with study design. When the policy applies NHGRI encourages sharing of all data types. … … NHGRI to require explicit consent for data sharing in genomics research December 30, 2019  Protecting …
Professional Development Programs
The Genetics and Public Policy Fellowship is designed for individuals interested in the development and implementation of genetics-related health and research policies at a national level.
… to improve health are deeply influenced by important policy decisions at the national level. From guiding research … agendas to informing the integration of genetics and genomics in clinical settings, sound evidence-based public … enhance and accelerate equitable access to the benefits of genomics research. These policies are better informed with …
Policy Issues
There are laws and policies that serve to protect the privacy of individuals' genomic information.
… debate whether we need further measures. … When conducting genomics research, two essential values of scientific … a DNA sample can never be truly anonymized. To advance genomics research, NIH houses several databases where … of the research participants (see Genomic Data Sharing Policy  below). In addition, NIH issues Certificates of …
News Release
Today, we are updating the way we manage data related to the NIH Genomic Data Sharing Policy.
… way we manage data related to the NIH Genomic Data Sharing Policy to again allow unrestricted access to genomic summary … will help to maximize the benefit of our investment in genomics research while ensuring that studies with particular … Carrie D. Wollinetz, Ph.D., Associate Director for Science Policy, National Institutes of Health … Related Content … …