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Policies and Guidance
The NHGRI funding policy is aimed at accelerating scientific and medical breakthroughs that improve human health.
… 2023 Final Funding Policy for NHGRI 2022 Final Funding Policy for NHGRI 2021 Final Funding Policy for NHGRI 2020 Final Funding Policy for NHGRI 2019 … Funding Policy … The National Human Genome Research Institute funding policy is aimed at accelerating scientific and medical …
FAQ
Frequently asked questions from the May 23, 2023 informational webinar, ELSI Research and the New NIH Data Management and Sharing (DMS) Policy.
… standards available for qualitative interview data? NHGRI recognizes that methods for de-identification of … are developing, and existing tools may have limitations. NIH guidance refers researchers to the following tools for … Services NIST’s tools for de-identification Guidance on sharing images from the National Cancer Imaging Archive The …
Event
On May 19-20, 2016, the National Human Genome Research Institute (NHGRI) hosted a two-day workshop where participants were asked to weigh the benefits and risks of sharing aggregate genomic data with secondary users.
… NIH Background Fact Sheet on GWAS Policy Update Workshop on Establishing a Central Resource of Data from Genome Sequencing Projects Report Resolving … asked to weigh the benefits and risks of sharing aggregate genomic data with secondary users. … Workshop on Sharing Aggregate Data …
News Release
NIH submits new policy that requires all NIH-funded investigators who conduct sensitive, health-related research be issued Certificates of Confidentiality.
… privacy provisions, the National Institutes of Health (NIH) put forth a new policy which requires that all NIH-funded investigators who … researcher request to cover studies collecting sensitive data; however, under the new policy, as of October 1, 2017, … New policy to protect research participants of NIH-funded research …
Staff
Cristina Kapustij was the chief of the Policy and Program Analysis Branch at the National Human Genome Research Institute until June 2024.
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… Cristina Kapustij, M.S., is chief of the Policy and Program Analysis Branch at the National Human … Kapustij spearheads the branch’s efforts to understand the policy implications of genomics research and technologies, … policy positions on issues arising from the translation of genomic research discoveries to uses within the public …
Organizational Structure
NHGRI’s Office of Genomic Data Science (OGDS) provides leadership, strategic guidance and coordination for NHGRI activities, programs and policies in genomic data science.
… X (Twitter): The NIH Cloud Platform Interoperability Effort (NCPI) has been … backgrounds to help implement computational genomics and data science materials at their schools! October 2023 … as the coordinating hub for NHGRI involvement in trans-NIH genomic data science efforts and in national and …
About NHGRI
The Genomic Data Science Working Group facilitates engagement of the National Advisory Council for Human Genome Research on genomics and data science issues.
… The NHGRI Genomic Data Science Working Group facilitates a deeper engagement of … on complex issues at the interface between genomics and data science. … The NHGRI Genomic Data Science Working Group was created in 2017 as a … Genomic Data Science Working Group … The Genomic Data Science Working Group facilitates engagement of …
News Release
The NHGRI-ASHG Genetics and Public Policy Fellowship prepares scientists for careers in science policy.
… and medical care of Americans is greatly influenced by the policy decisions that guide genomic research and its use in the clinical setting. Understanding the interplay of policy and scientific research is critical to defining good … Strengthening the Policy Workforce The National Human Genome Research Institute …
Research Funding
Policies and guidance regarding research funding from the NHGRI and the National Institutes of Health.
… The National Institutes of Health (NIH) Grants Policy Statement is the definitive resource for grants policy. Those interested in applying for a specific grant … The NIH is the principal federal agency responsible for … and the sponsoring agency. The relationship between NIH and its grantees is predicated on trust. The NIH expects …
About Genomics
NHGRI considers the ethical, legal and social aspect of genomics research in our work, including these key policy issues
… Policy Issues in Genomics … of genomics research in our work, including these key policy issues. … of genomics research in our work, including these key policy issues …