Search Results
Policy Issues
Informed consent shows respect for personal autonomy and is an important ethical requirement in research.
… It is essential to respect the rights and interests of research participants, given that their contributions, … health-related information, are critical for the success of most human scientific research. Researchers and research … Inform individuals about susceptibility to a broad range of conditions (some of which are unexpected given personal or …
Media Advisory
With the publication of 16 high-quality reference genomes from across vertebrates, the Vertebrate Genome Project establishes standards for biodiversity genomics and reports discoveries in comparative biology, conservation, and health research
… The Vertebrate Genomes Project , part of the Genome 10K  Community of Scientists, today announced their flagship study and … genomes from across vertebrates, the project establishes standards for the new era of biodiversity genomics, and … Vertebrate Genomes Project produces first set of 16 animal reference genomes …
Research at NHGRI
The Division of Intramural Research conducts scientific studies in NHGRI's labs on and around the NIH campus in Bethesda, Md.
… led by the Scientific Director, with input from its Board of Scientific Counselors  - a group that provides expert … all research and training ongoing in the NHGRI Division of Intramural Research. Clinical research is overseen by the … investigators involved in patient-based research.  Each of the more than 50 NHGRI investigators are assigned to one …
Research at NHGRI
The Social and Behavioral Research Branch conducts research to apply genomic discoveries to improve health and clinical care.
… aims to develop optimal approaches for the integration of genomic discoveries into clinical and community contexts. … Our research focuses on a spectrum of disorders from those that have a major public health … with significant impact on affected families. We conduct research at the intersection of genomics and the …
Professional Development Programs
The JHU/NHGRI Genetic Counseling Training Program trains students to conduct research and provides clinical rotations to learn about genetic conditions.
… Genetic Counseling Training Program trains students to conduct social, behavior and policy research in the field of genetic counseling and provides clinical rotations for … impact on individuals and their families, and the role of the professional genetic counselor. …
About Genomics
NHGRI considers the ethical, legal and social aspect of genomics research in our work, including these key policy issues
… NHGRI is committed to driving the responsible use of genomics in society in order to advance knowledge and ensure that genomics benefits the health of all humans. To do this, we consider the ethical, legal, and social aspect of genomics research in our … NHGRI considers the ethical, legal and social aspect of genomics research in our work, including these key policy …
Administrative
NHGRI branch responsible for education and community involvement programs to increase understanding of genomics and its ethical, legal, and social issues.
… and community involvement programs to engage a broad range of the public in understanding genomics and accompanying ethical, legal, and social issues. … education programs include those to inform the public of the latest advances in genomics, as well as to support the …
Clinical Research
The Institutional Review Board (IRB)Â is responsible for protecting the rights and welfare of the human subjects of research protocols that are conducted by intramural investigators in NHGRI and a number of other institutes.
… (IRB) is responsible for protecting the rights and welfare of the human subjects of research protocols that are conducted by intramural investigators in NHGRI and a number of other institutes. … Review Board Office (IRBO) located within the Office of Human Subjects Research Protections (OHSRP). The OHSRP …
Virtual Exhibit
The Human Genome Project changed traditional understandings of how and why scientific research is conducted. It was, however, not without its detractors. Early in 1990, there was an effort to stop funding for the nascent Human Genome Project, in the form of a letter writing campaign.
… Caption: A copy of the first page of Martin Rechsteiner’s letter, which circulated and spurred … anti-Human Genome Project letter campaign. The first line of the letter reads “The human genome project: mediocre … Caption: A copy of a letter sent from a University of Kentucky professor, …
News Release
American Indians and Alaska Natives IRB training programs at NIH ensure the welfare of people participating in federally regulated research.
… Aha moments were among the unexpected outcomes of the Institutional Review Board (IRB) training program for … Indians and Alaska Natives at the National Institutes of Health (NIH). IRBs are committees, at NIH and at other research institutions, which ensure the welfare of people who participate in certain types of …