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Policies and Guidance
A webpage with information and associated FAQs that describe various expectations for data sharing that are specific to NHGRI-supported studies.
… non-human genomic data that are subject to the NIH GDS Policy to be submitted and released on the same timeline as … NHGRI data sharing policies. For general NIH data sharing policy information, please visit NIH's Scientific Data … . … Note: The NIH Data Management and Sharing (DMS) Policy ( NOT-OD-21-013 ) went into effect on January 25, …
Policies and Guidance
For FY2024, NHGRI’s extramural program will be operating under the NHGRI 2020 Strategic Vision.
… Researchers Initiative (NGRI)  efforts and NIH’s policy on early-stage investigators , NHGRI is committed to … in Direct Costs in Any Year ) NHGRI Implementation of NIH Policy on Acceptance for Review of Applications Requesting … the amount of direct salary to Executive Level II of the Federal Executive pay scale, as released by the Office of …
Policies and Guidance
For FY21, NHGRI’s extramural program will be operating under the NHGRI 2020 Strategic Vision.
… To facilitate the implementation of this NIH-wide policy, NHGRI is very flexible in the support of early stage … date. For more information, see: NOT-OD-02-004 : Revised Policy On The Acceptance For Review of Unsolicited … to a rate no greater than Executive Level II of the Federal Executive Pay Scale. Effective December 27, 2020, the …
Policies and Guidance
For most of FY20, NHGRI’s extramural program will be operating under the 2011 National Human Genome Research Institute (NHGRI) strategic plan.
… To facilitate the implementation of this NIH-wide policy, NHGRI is very flexible in the support of early stage … beyond what is required by the NIH fiscal year grants policy; (3) supporting new investigators for four or five … to a rate no greater than Executive Level II of the Federal Executive Pay Scale. Effective January 5, 2020, the …
Policies and Guidance
For FY22, NHGRI’s extramural program will be operating under the NHGRI 2020 Strategic Vision.
… To facilitate the implementation of this NIH-wide policy, NHGRI is very flexible in the support of early stage … February 16 and December 30 (inclusive). The NIH “ Revised Policy On The Acceptance For Review of Unsolicited … to a rate no greater than Executive Level II of the Federal Executive Pay Scale. Effective January 2, 2022, the …
Policies and Guidance
For FY2023, NHGRI’s extramural program will be operating under the NHGRI 2020 Strategic Vision.
… of Award issued in FY2022 as described in the FY23 Fiscal Policy . Small Business Innovation Research (SBIR) and Small … To facilitate the implementation of this NIH-wide policy, NHGRI is very flexible in the support of early stage … to a rate no greater than Executive Level II of the Federal Executive Pay Scale. Effective January 1, 2023, the …
Data Sharing Policies
Sample informed consent language, aligned with each of the informational elements of consent for genomic data sharing (GDS) outlined by NIH as important to convey, in language understandable to prospective participants.
… with the participant’s informed consent and all applicable federal and state laws and regulations.  *Note: NIH and … and HIPAA. Safeguards to protect the data according to Federal standards for information protection will be … access to your own information.   - Credit: NIH CoC Policy Page  … Sample Informed Consent Language Aligned to …
Policy Issues
There are laws and policies that serve to protect the privacy of individuals' genomic information.
… the need to protect research participants’ privacy.  Federal laws like the Common Rule  and the Health Insurance … of the research participants (see Genomic Data Sharing Policy  below). In addition, NIH issues Certificates of … contexts. The Combined DNA Index System (CODIS) is the Federal Bureau of Investigation (FBI) program of support and …
News Release
NIH issues a notice seeking public comment on a proposed update to the data management of genomic summary results under the NIH Genomic Data Sharing Policy.
… summary results under the NIH Genomic Data Sharing (GDS) Policy. The proposed update to the GDS policy's data management practices would help support NIH's … NIH chief of staff and associate director for science policy, and NHGRI director, Dr. Eric Green. Additionally, …
News Release
Today, we are updating the way we manage data related to the NIH Genomic Data Sharing Policy.
… way we manage data related to the NIH Genomic Data Sharing Policy to again allow unrestricted access to genomic summary … Carrie D. Wollinetz, Ph.D., Associate Director for Science Policy, National Institutes of Health … Related Content … … way we manage data related to the NIH Genomic Data Sharing Policy. ​ … Eric Green, Genome Data Sharing Policy, privacy, …