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The Genomics Landscape
In the July 2018 edition of The Genomics Landscape, NHGRI Director Eric Green highlights the 10th anniversary of the Undiagnosed Diseases Program.
The Genomics Landscape
In the September 2019 edition of The Genomics Landscape, NHGRI Director Eric Green details the American Society of Human Genetics' (ASHG) new strategic plan, which aims to get people everywhere to realize the benefits of genomics and genetics research.
Data Sharing Policies
Sample informed consent language, aligned with each of the informational elements of consent for genomic data sharing (GDS) outlined by NIH as important to convey, in language understandable to prospective participants.
MINC
Each clinical setting is unique. Strategies that will work in your environment can be used to design your interventions based on suggested options from the Champions.
… Presbyterian: Genetic Information Nondiscrimination Act Legislation Texas Health Presbyterian: Genomics Crossword …
Professional Development Programs
The JHU/NHGRI Genetic Counseling Training Program trains students to conduct research and provides clinical rotations to learn about genetic conditions.
… community to advocate for impactful, science-driven legislation and policy that advances the equitable …
Policy Issues
El uso de seres humanos en las investigaciones biomédicas, clÃnicas y socioconductuales puede ofrecer entendimiento y descubrimientos que no pudieran obtenerse de ninguna otra manera.
The Genomics Landscape
In the December 3, 2020 edition of The Genomics Landscape, Dr. Eric Green spotlights on ELSIhub.
… solicit expert commentary, obtain advice on policy or legislation, and arrange mentor/mentee relationships. The …
About NHGRI
A timeline of notable events in the history of the National Human Genome Research Institute.
… announces that the Clinton administration is calling for legislation to bar employers from discriminating against …
Policy Issues
Las pruebas genéticas se están convirtiendo en algo más común en la práctica clÃnica.
Policy Issues
The GINA is an important U.S. civil rights law that protects individuals from discrimination based on their genetic information.
… Unfortunately, news on the genetic nondiscrimination legislation is not as good. Later in 2000, the bills die a … ). This version of Sen. Snowe's bill is the first time her legislation contains protections against employment … Congress, Rep. Slaughter and Sen. Snowe try to push their legislation forward again ( H.R. 1910 , S. 1053 ). This same …