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- Ethical, Legal and Social Implications (ELSI) Research Program7
- Genomics-Enabled Learning Health Systems (gLHS)2
- Genome Technology Program4
- Human Genome Reference Program (HGRP)2
- Impact of Genomic Variation on Function (IGVF) Consortium3
- Encyclopedia of DNA Elements (ENCODE) Project1
- Molecular Phenotypes of Null Alleles in Cells (MorPhiC)1
- Genomic Innovator Awards2
- NHGRI Genomic Data Science Analysis, Visualization and Informatics Lab-space (AnVIL)3
- Genomics Research to Elucidate the Genetics of Rare Diseases (GREGOR) Consortium2
- Developmental Genotype-Tissue Expression (dGTEx)1
- Multi-Omics for Health and Disease (Multi-Omics)1
The Genomics Landscape
In the February 2, 2023 edition of The Genomics Landscape, NHGRI Director, Eric Green, M.D., Ph.D., talks about the new NIH Data Management and Sharing (DMS) Policy and how it emphasizes the importance of good data management practices.
… MBBS, D.Phil. , senior investigator within our Intramural Research Program’s Center for Precision Health , to learn more about his serendipitous journey into genetics research and what he is excited about for the future of … date for the new NIH Data Management and Sharing (DMS) Policy occurred last month – January 25, 2023. The DMS Policy …
Policies and Guidance
A webpage with information and associated FAQs that describe various expectations for data sharing that are specific to NHGRI-supported studies.
… Exception for Samples Lacking Explicit Consent for Future Research Use and Broad Data Sharing    Investigators … non-human genomic data that are subject to the NIH GDS Policy to be submitted and released on the same timeline as … balance the expectation to share data with participant privacy considerations . Though the expectation is for …
Policies and Guidance
For most of FY20, NHGRI’s extramural program will be operating under the 2011 National Human Genome Research Institute (NHGRI) strategic plan.
… - individuals from different and complementary related research disciplines and career - are being sought. NHGRI’s … participation by many scientists in the extramural research community, as well as other scholars and members of … To facilitate the implementation of this NIH-wide policy, NHGRI is very flexible in the support of early stage …
Policy Issues
Revisions to the Common Rule modernize, simplify, and enhance oversight for human subjects research in the United States.
… simplify, and enhance" oversight for human subjects research in the United States to address changes in the … these technologies along with recommendations on consent, privacy, and data protections that will go through a public … follow-up (.109(f)). Tribal Sovereignty (.101(f)) The policy, as before, does not affect state or local laws and …
Clinical Research
The Institutional Review Board (IRB)Â is responsible for protecting the rights and welfare of the human subjects of research protocols that are conducted by intramural investigators in NHGRI and a number of other institutes.
… protecting the rights and welfare of the human subjects of research protocols that are conducted by intramural … Data Sharing U.S. Federal Government 45 CFR 46 Federal Policy for the Protection of Human Subjects  Office for … of other institutes. … Human Subjects Research, Research Privacy, Privacy Of Research Participants, Clinical Trials, …
Policies and Guidance
For FY2024, NHGRI’s extramural program will be operating under the NHGRI 2020 Strategic Vision.
… and data science. Dissemination and implementation of research findings and technology to the broader biomedical … issues related to genomic advances. Projects that broaden research involving diverse populations. Training, developing, … Researchers Initiative (NGRI)  efforts and NIH’s policy on early-stage investigators , NHGRI is committed to …
Policies and Guidance
For FY22, NHGRI’s extramural program will be operating under the NHGRI 2020 Strategic Vision.
… participation by many scientists in the extramural research community, as well as other scholars and members of … approved by the National Advisory Council for Human Genome Research (NACHGR). The focus of NHGRI funding support … To facilitate the implementation of this NIH-wide policy, NHGRI is very flexible in the support of early stage …
Policies and Guidance
For FY21, NHGRI’s extramural program will be operating under the NHGRI 2020 Strategic Vision.
… participation by many scientists in the extramural research community, as well as other scholars and members of … approved by the National Advisory Council for Human Genome Research (NACHGR). The focus of NHGRI funding support remains … To facilitate the implementation of this NIH-wide policy, NHGRI is very flexible in the support of early stage …
Policies and Guidance
For FY2023, NHGRI’s extramural program will be operating under the NHGRI 2020 Strategic Vision.
… participation by many scientists in the extramural research community, as well as other scholars and members of … approved by the National Advisory Council for Human Genome Research (NACHGR). The focus of NHGRI funding support … of Award issued in FY2022 as described in the FY23 Fiscal Policy . Small Business Innovation Research (SBIR) and Small …
Research at NHGRI
The NHGRI Intramural Research Award recognizes research achievements by trainees in basic, clinical, and social behavioral science research.
… The NHGRI Intramural Research Award distinguishes meritorious research accomplishments for a single, notable research achievement or a larger body of work of exemplary …