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News Release
The Genetics and Public Policy and Genetics and Education Fellowships provide a pathway for scientists to pursue careers in science policy or education.
… Rapid advances in genomic research have led to a wealth of potential clinical … Policy and Education Careers One way to ensure that genomic discoveries in the lab drive policy and education for … Like a Scientist" series, where we invite speakers from NIH to come talk to the students about their research …
News Release
Ten investigators will receive exome sequencing data as part of their clinical research projects at the NIH Clinical Center.
… Ten intramural investigators will receive exome sequencing data as part of their clinical research projects at the NIH Clinical Center through awards just announced by the National Institutes of Health (NIH) Office of Intramural Research (OIR). … Center Genomics Opportunity (CCGO), which is encouraging NIH institutes to jumpstart genomic medicine by increasing …
The Genomics Landscape
In the April 2024 issue of The Genomics Landscape, NHGRI Director Eric Green details how the Office of Genomic Data Science (OGDS) is becoming the epicenter for genomic data science at the institute, with numerous collaborations, projects and activities.
… . Ironically, April also brings fairly recent news about NIH’s Fiscal Year 2024 budget, which was finalized late last … This budget provides $48.6 billion in base funding across NIH, which is an increase of approximately $300 million over … genomic data science activities within NHGRI and across NIH. OGDS is involved in a number of activities, such as …
News Release
The National Human Genome Research Institute (NHGRI) has selected Valentina Di Francesco as the Institute’s first chief data science strategist and director of its new Office of Genomic Data Science. In this role, she will provide leadership, strategic guidance and coordination for NHGRI activities, programs and policies in genomic data science. NHGRI is part of the National Institutes of Health (NIH).
… She will lead new NHGRI Office of Genomic Data Science. … data science strategist and director of its new Office of Genomic Data Science. In this role, she will provide … NHGRI is part of the National Institutes of Health (NIH). For more than 7 years, Di Francesco has been the lead …
Professional Development Programs
The Genetics and Public Policy Fellowship is designed for individuals interested in the development and implementation of genetics-related health and research policies at a national level.
… to improve health are deeply influenced by important policy decisions at the national level. From guiding research … ASHG and NHGRI co-sponsor the Genetics and Public Policy Fellowship to give genetics/genomics professionals an opportunity to contribute to the policy-making process. The fellowship is designed as a bridge …
News Release
Cari Young and Julie Nadel join NHGRI as public policy and education fellows.
… Society of Human Genetics (ASHG)/NHGRI Genetics and Public Policy Fellow. She will spend her first four months with the … to NHGRI and learn more about how a government agency like NIH develops policies and how its voice is heard in the … audiences, further developing her passion for genetic and genomic literacy and education. "My goal is to help improve …
Administrative
NHGRI branch responsible for policy development and analysis related to advances in genomics research.
… The Policy and Program Analysis Branch (PPAB) of the Division of Genomics and Society conducts policy development and analysis that enables the National … PPAB promotes policies that facilitate the uptake of genomic technologies into the clinic and broader society, the …
The Genomics Landscape
In the December 3, 2020 edition of The Genomics Landscape, Dr. Eric Green spotlights on ELSIhub.
… you aware of an important National Institutes of Health (NIH) milestone that took place earlier this fall. October 31, … Delano Roosevelt’s dedication of the campus of the NIH in Bethesda, Maryland. I encourage you to read the NIH … out that we have added a new temporary section to The Genomic Landscape , one that highlights the “Guiding …
News Release
Researchers analyzing human, fly, and worm genomes have found these species have key genomic processes in common, reflecting their shared ancestry.
… genomes have found that these species have a number of key genomic processes in common, reflecting their shared … The studies highlight the data generated by the modENCODE Project and the ENCODE … www.genome.gov . About the National Institutes of Health (NIH) : NIH, the nation's medical research agency, includes 27 …
Policy Issues
There are laws and policies that serve to protect the privacy of individuals' genomic information.
… An individual’s privacy should be respected when their genomic information is used for research, clinical … or other uses. This page summarizes genetic and genomic privacy in these domains, along with information on … laws and policies that protect the privacy of genetic and genomic information. In the United States, the applicable …