Search Results
The Genomics Landscape
In the May 2021 issue of the Genomics Landscape, NHGRI Director, Eric Green, M.D., Ph.D. notes that a number of individuals with strong ties to NHGRI have been nominated and/or appointed to serve on the White House Science Team.
… is here, and with it comes many opportunities to engage in areas related to genomics and the biomedical research … open science and data sharing are done in ways that are ethical and equable, and that the data are shared with … each willing to foster sustained attention to these issues in their research institutions and training programs; …
The Genomics Landscape
In the September 2021 issue of The Genomics Landscape, NHGRI Director, Eric Green, M.D., Ph.D., details how social media provides NHGRI staff with a space to talk about their work, make genomics topics easy to understand, and show how genomics can positively affect people.
… array of updates about the many happenings at NHGRI and in genomics, I would like to draw your attention to efforts of … and data interpretation. This RFI was released in parallel with a companion RFI focused on reference …
Explainer
Appropriate use of population descriptors in research is a critical scientific issue that is important for advancing genomic science and improving healthcare across human populations.
… The Big Picture Appropriate use of population descriptors in research is a critical scientific issue that is important … researchers and other stakeholders is important given the ethical, legal and social implications of their historical … ethnicity may be useful for examining social or political issues; documenting racial/ethnic health disparities ; …
News Release
NIH issues a notice seeking public comment on a proposed update to the data management of genomic summary results under the NIH Genomic Data Sharing Policy.
… the National Institutes of Health (NIH) issued a notice in its Guide to Grants and Contracts seeking public comment … to update data management of genomic summary results … NIH issues a notice seeking public comment on a proposed update … privacy and research participants, science policy … NIH issues a notice seeking public comment on a proposed update …
Policy Issues
Genome editing is a method that lets scientists change the DNA of many organisms, including plants, bacteria, and animals.
… bacteria, and animals. Editing DNA can lead to changes in physical traits, like eye color, and disease risk. … policymakers still have to address technical barriers and ethical concerns surrounding genome editing. Technical … held a conference to talk about these and similar ethical issues at the International Summit on Human Gene Editing . … …
Policy Issues
Scientists have edited genomes for many years, but CRISPR technology has improved the speed, cost, accuracy, and efficiency of genome editing
… Techniques to modify DNA in the genome have existed for several decades, but the … tends to focus on the potential use of genome editing in humans, the main application of this technology has been … creating targeted mutations to the genome. 5 Large-scale genomics projects that once took many years and tens of … accuracy, and efficiency of genome editing … Policy Issues …
The Genomics Landscape
In the October 2024 issue of The Genomics Landscape, NHGRI Director Eric Green welcomes James Thomas as the new director for NIH Intramural Sequencing Center (NISC).
… address to the entering class at Spelman College in Atlanta, Georgia. Since most of the students in attendance are not majoring in the sciences, I focused on how genomics is increasingly relevant in our everyday lives. It …
Careers and Training
The Health Disparities Unit (HDU) in the Social and Behavioral Research Branch (SBRB) of the National Human Genome Research Institute (NHGRI) is recruiting a postdoctoral fellow interested in the study of the intersection of genomics, social determinants of health and health inequities.
… The Health Disparities Unit (HDU) in the Social and Behavioral Research Branch (SBRB) of the … fellow interested in the study of the intersection of genomics, social determinants of health and health inequities … genetic therapies into health care, as well as societal issues of genomics, race and human genetic variation. … The …
Profile
In an interview, Boyer reflects on her NHGRI career, the history of the NHGRI ELSI Research Program and the exciting future of research at the interface of ethics and genomics.
… From pastor to program director in the Division of Genomics and Society, Joy Boyer concludes … is really important, and if we can't seriously deal with issues around social and health inequities, the rest of … research and society through the institute’s fairly young Ethical, Legal and Social Implications (ELSI) Research …
The Genomics Landscape
In the October 2021 issue of The Genomics Landscape, NHGRI Director, Eric Green, M.D., Ph.D., introduces us to new scientific director Charles Rotimi, Ph.D., his background and prior accomplishments.
… to bring to your attention a spectacular recent feature in Science that describes the remarkable work of NHGRI’s … per year, the next one being October 27, 2021. … The 5th Ethical, Legal, and Social Implications (ELSI) Congress will … for a Just and Equitable Future.” Justice and equity issues are embedded in the complex questions about utility, …