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About NHGRI
The Genomics and Society Working Group advises on planning and priorities for genomics and society activities at NHGRI.
… The Genomics and Society Working Group provides advice on short- and long-range planning and priority setting for genomics and society activities at the National Human Genome … in light of changes in genomics, genomic medicine, and the policy landscape, aiming to identify emerging issues or gaps. …
Policy Issues
Genome editing is a method that lets scientists change the DNA of many organisms, including plants, bacteria, and animals.
… many organisms, including plants, bacteria, and animals. … Policy Issues …
News Release
The National Institutes of Health (NIH) Genomic Data Sharing Policy includes expectations for how researchers should obtain, share and access genomic data from human and non-human sources. As a leader in genomics, including relevant policy development and implementation, the National Human Genome Research Institute (NHGRI) encourages data sharing practices that go beyond the NIH expectations.
… National Institutes of Health (NIH) Genomic Data Sharing Policy includes expectations for how researchers should … data from human and non-human sources. As a leader in genomics, including relevant policy development and … … NHGRI to require explicit consent for data sharing in genomics research … The National Institutes of Health (NIH) …
Policy Issues
Scientists have edited genomes for many years, but CRISPR technology has improved the speed, cost, accuracy, and efficiency of genome editing
… creating targeted mutations to the genome. 5 Large-scale genomics projects that once took many years and tens of … cost, accuracy, and efficiency of genome editing … Policy Issues …
The Genomics Landscape
In the September 3, 2020 edition of The Genomics Landscape, Dr. Eric Green talks about the Impact of Genomic Variation on Function (IGVF) Consortium, the 2020 Genomic Innovator Awards and more.
… from home. If you are seeking some virtual connections to genomics, I would like to offer some “remote learning” … Director) and I answered questions about bioethics and genomics research on Twitter as part of #AskDrGenome . … and she continues to play a key role in data sharing policy development and implementation as co-chair of NHGRI’s …
The Genomics Landscape
In the February 2024 issue of The Genomics Landscape, NHGRI Director Eric Green spotlights the Genome Statute and Legislation Database, which recently received a major revamp to help researchers, policy analysts, and the public more easily find state-level legislation related to genomics.
… Genomic Medicine Research Program ( PAR-18-735 ). … As genomics advances, relevant legislation must advance with it, such as new laws related to the use of genomics in healthcare and protections that preserve privacy … recently received a major revamp to help researchers, policy analysts, and the public more easily find state-level …
Policy Issues
The Genome Statute and Legislation Database is comprised of state statutes and bills introduced during U.S. state legislative sessions.
… sessions. … NHGRI's Table of State Statutes Related to Genomics provides the total number of states that have … Building a Sound Legal Foundation for Translating Genomics into Clinical Application” (grant #: R01HG008605 ; … bills introduced during U.S. state legislative sessions. … Policy Issues …
Policy Issues
Genome editing is currently being applied to research on cancer, mental health, rare diseases, and many other disease areas.
… health, rare diseases, and many other disease areas. … Policy Issues …
Policy Issues
Most ethical discussions about genome editing center on human germline editing because changes are passed down to future generations.
… that concerns about enhancement should be managed through policy and regulation. Lastly, commenters on the issue are … the approaches, objectives and global society. Brief Funct Genomics, 16(1), 46-56. doi:10.1093/bfgp/elv053 [8] Park, A. … because changes are passed down to future generations. … Policy Issues …
Staff
Dr. Dave Kaufman is a program director Division of Genomics and Society at the National Human Genome Research Institute.
… … Dave Kaufman, Ph.D. … Dave Kaufman, return of results policy, ethical legal and social implications, genomic … citizen science … Dave Kaufman, return of results policy, ethical legal and social implications, genomic … … Dr. Dave Kaufman is a program director Division of Genomics and Society at the National Human Genome Research …