Search Results
Research Funding
The centers study in innovative ways to address important ethical, legal, and social issues related to advances in genomics.
… decision-making and couples communication. Genetic Privacy and Identity in Community Settings Ellen Wright … J.D., $4 million (FY 2016-2019) This center is studying privacy risks associated with genomic information, examining … the effectiveness of legal and policy efforts to reduce privacy risks, and studying the likelihood that lapses in …
Policies and Guidance
NHGRI links to external websites to supplement the information found on our website.
… private organizations. You are subject to external site's privacy policy when you leave our site. We proudly comply …
Research Funding
The NHGRI Ethical, Legal and Social Implications (ELSI) Research Program Abstracts and Activities Database organizes abstracts for all ELSI-related activities
… an ELSI issue, (i.e., discrimination, genetic testing or privacy) The type of grant (i.e., education, research or …
Administrative
The Management Analysis and Workforce Development Branch provides advisory services, develops policies and procedures, and coordinates implementation at NHGRI.
… and workforce management and optimization services: Privacy Coordination and Compliance Records Management Risk …
Research Funding
The ELSI Publications and Products Database organizes publications for ELSI projects and activities by the last name of the principle investigator.
… an ELSI issue, (i.e., discrimination, genetic testing or privacy) The name of the author The name of the journal The …
Clinical Research
An Observational Prospective Natural History Study of Metabolism, Infection and Immunity During the COVID19 Pandemic (At-home Participation).
… and/or symptom updates with us after joining the study. Privacy and confidentiality are very important to us. All …
Clinical Research
A study to learn more about the role of viral infection and biomarkers of immunity in mitochondrial disease, utilizing new technology with Neoteryx™ fingerstick at-home sampling.
… to undergo a physical exam by a physician via telehealth. Privacy and confidentiality are very important to us. All …
Policy Issues
The Genome Statute and Legislation Database is comprised of state statutes and bills introduced during U.S. state legislative sessions.
… and insurance discrimination, health insurance coverage, privacy, research, the use of residual newborn screening …
Policy Issues
The Genome Statute and Legislation Database is comprised of state statutes and bills introduced during U.S. state legislative sessions.
… and insurance discrimination, health insurance coverage, privacy, research, the use of residual newborn screening …
News Release
NHGRI published its “Strategic vision for improving human health at The Forefront of Genomics” in the journal Nature. This vision describes the most compelling research priorities and opportunities in human genomics for the coming decade, signaling a new era in genomics for the Institute and the field.
… past. The vision points to critical areas of data control, privacy and consent that the genomics community must improve …