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Event
Several NIH Institutes, Offices and Centers partnered to host a two-day virtual workshop on May 28-29, 2024, to further explore the recommendations from the National Academies of Sciences, Engineering and Medicine (NASEM) 2023 report, Using Population Descriptors in Genetics and Genomics Research: A New Framework for an Evolving Field, with regards to legacy genomic data. 
… were to: Understand NASEM report recommendations, and consider how they relate to the ongoing use of legacy … with current approaches to harmonization, interoperability and analysis, including genetic similarity;  Address challenges and identify potential solutions;  Develop practical …
News Release
A new phase of the IGNITE Network will conduct clinical trials of genomic medicine interventions.
… fund clinical trials to assess the benefits, applicability and efficacy of applying genomic medicine interventions to … of depression and/or pain in patients regardless of race or ethnicity may be more effective and have fewer side effects …
News Release
NHGRI researchers collaborated with physicians and medical geneticists worldwide to create the Atlas of Human Malformation Syndromes in Diverse Populations.
… Institutes of Health, have collaborated with physicians and medical geneticists around the world to create the Atlas … the atlas does not make mistaken connections between race, ethnicity and genetic diseases or reinforce stereotypes that …
News Release
NHGRI plans to appoint Vence Bonham Jr., J.D., as acting deputy director, to elevate and accelerate efforts in diversity, inclusion and health equity.
… Sarah A. Bates, M.S. … Appointment will elevate and accelerate NHGRI’s efforts in diversity, inclusion and … study how genomics influences the use of the constructs of race and ethnicity in biomedical research and clinical care, as well …
News Release
Diverse populations are still underrepresented in public genomic databases, according to a new study by researchers from the NIH and Harvard Medical School.
… by researchers from the National Institutes of Health and Partners Healthcare/Harvard Medical School.* … Diverse … the FDA has issued guidance on collecting and reporting race and ethnicity information in clinical trials. But more can and …
The Genomics Landscape
In the October 2018 edition of The Genomics Landscape, NHGRI Director Dr. Eric Green highlights Dr. Dan Kastner as the Federal Employee of the Year.
… 1. Unlike most previous years in recent memory, the NIH (and therefore NHGRI) began Fiscal Year 2019 with an … Expands NIH Leaders Call for a Consensus on the Use of Race and Ethnicity Data in Biomedical Research NIH to Build a Detailed …
Leadership Initiatives
NHGRI aims to ensure all populations are knowledgeable about and can participate in genomics research.
… about the science underpinning the Human Genome Project and genomics research, and have the opportunity to … participate in genomics research. Workshop on the Use of Race and Ethnicity in Genomics and Biomedical Research  Inclusion and …
File
… DEPARTMENT OF HEALTH AND HUMAN SERVICES National Institutes of Health Office of … Table 2 a presents FY201 3-FY201 4 actual enrollment by race, ethnicity and gender excluding 23andMe . Among the 2 38 ,273 …
File
… Council Meeting February 9 , 2015 Inclusion of Women and Minorities in NHGRI Clinical Studies FY2013 - FY2014 … Not Hispanic or Latino ( Not Hisp ) Unknown (Not reporting ethnicity) ( Unk ) Racial Categories American Indian/Alaska … ) Black or African American ( Bl /AA ) White More Than One Race ( >1 Race ) Unknown or Not Reported ( Unk ) • ERP funds …
National Advisory Council for Human Genome Research
The Director's Report-Related Documents contain links to materials supplemental to Dr. Eric Green's Director's Report presentation to the National Advisory Council for Human Genome Research in February 2022.
… Office of Genomic Data Science 2 Training, Diversity, and Health Equity (TiDHE) Office TiDHE Office TiDHE News … Descriptors in Genetics Byeon - Evolving Use of Ancestry, Ethnicity, and Race in Genetics Research-A Survey Spanning Seven Decades …