Search Results
Policy Issues
Scientific institutions are developing recommendations to support the responsible use of human gene-editing research.
… editing, germline modifications, somatic cell therapy, societal implications, international perspectives, governance, and issues related to equity and access to technology. On … trials, there are still safety, technical, and ethical issues barring the wide application of this technology in …
The Genomics Landscape
In the May 2021 issue of the Genomics Landscape, NHGRI Director, Eric Green, M.D., Ph.D. notes that a number of individuals with strong ties to NHGRI have been nominated and/or appointed to serve on the White House Science Team.
… each willing to foster sustained attention to these issues in their research institutions and training programs; …
Policy Issues
Synthetic biology is a field of science that involves redesigning organisms for useful purposes by engineering them to have new abilities.
… the Presidential Commission for the Study of Bioethical Issues  and the National Academies of Sciences, Engineering … For additional resources about the ethics, governance and societal implications of synthetic biology, please refer to …  (Presidential Commission for the Study of Bioethical Issues) … What can synthetic biology do? … What is the …
Policy Issues
Most ethical discussions about genome editing center on human germline editing because changes are passed down to future generations.
… doi:10.1038/519410a [5] Hampton, T. (2016). Ethical and Societal Questions Loom Large as Gene Editing Moves Closer to … changes are passed down to future generations. … Policy Issues …
Policy Issues
The 9 steps a bill can go through before becoming a law, using the Genetic Information Non-Discrimination Act of 2003 as an example.
… Non-Discrimination Act of 2003 as an example. … Policy Issues …
The Genomics Landscape
In the February 2024 issue of The Genomics Landscape, NHGRI Director Eric Green spotlights the Genome Statute and Legislation Database, which recently received a major revamp to help researchers, policy analysts, and the public more easily find state-level legislation related to genomics.
… and monitoring career progression to better understand the issues and devise career support programs in the future. …  …
Policy Issues
Federally-funded research with human participants must comply with regulations that protect the rights and welfare of the participants.
… genomes as part of a research study raises a number of issues that the informed consent process needs to address, … from Research Risks provides guidance on addressing these issues. Identifiable Populations Identifiable populations, … resources to help their members consider the major issues that come with participating in research. For American …
Policy Issues
There are laws and policies that serve to protect the privacy of individuals' genomic information.
… Genomic Data Sharing Policy  below). In addition, NIH issues Certificates of Confidentiality  to enable NIH-funded … the privacy of individuals' genomic information. … Policy Issues …
Policy Issues
This glossary contains definitions for commonly used terms (such as "bill", "statute", "regulation" and more) found in the Genome Statue and Legislative Database.
… or amend rules that apply to both houses; to deal with issues or matters affecting both houses, such as a concurrent … in the Genome Statue and Legislative Database. … Policy Issues …
Policy Issues
Payers such as insurance companies and Medicare need systematic ways of evaluating genetic tests for reimbursement.
… of evaluating genetic tests for reimbursement. … Policy Issues …