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Policy Issues
Genome editing is currently being applied to research on cancer, mental health, rare diseases, and many other disease areas.
… funded by NHGRI or other NIH Institutes takes place in the petri dish and in nonhuman organisms such as mice or … In contrast, germline therapies pose a greater number of ethical hurdles because of their ability to affect future … rare diseases, and many other disease areas. … Policy Issues …
Staff
Dr. Dave Kaufman is a program director Division of Genomics and Society at the National Human Genome Research Institute.
… the National Human Genome Research Institute (NHGRI) in May of 2014, after working as an NHGRI ELSI grantee for … of research and career development grants related to the ethical, legal and social implications of genomic research. … He also focuses on big data and stakeholder engagement issues. Visit the ELSI Research Areas webpage for more …
Policy Issues
The Genome Statute and Legislation Database is comprised of state statutes and bills introduced during U.S. state legislative sessions.
… sessions. … NHGRI's Table of State Statutes Related to Genomics provides the total number of states that have enacted legislation on the topics in the database, together with a description of each topic. … during U.S. state legislative sessions. … Policy Issues …
The Genomics Landscape
In the June 2021 issue of The Genomics Landscape, NHGRI Director, Eric Green, M.D., Ph.D. details the upcoming appointment of acting NHGRI Deputy Director, Vence Bonham Jr., J.D. and what it means for the institute.
… is the 5th session of the “ Bold predictions for human genomics by 2030 ” seminar series, which takes place on … include webinars and Twitter chats (see additional details in the story below). All the best, … Embrace the … Vence is familiar with NHGRI’s long-standing leadership on issues related to diversity in genomics. Most recently, he …
The Genomics Landscape
In the September 3, 2020 edition of The Genomics Landscape, Dr. Eric Green talks about the Impact of Genomic Variation on Function (IGVF) Consortium, the 2020 Genomic Innovator Awards and more.
… from home. If you are seeking some virtual connections to genomics, I would like to offer some “remote learning” … 30th anniversary of the launch of the Human Genome Project in October 2020. Check out the latest oral histories by … the field of genomics. … One of the central challenges in biology is understanding how genomic variation affects …
The Genomics Landscape
In the February 2024 issue of The Genomics Landscape, NHGRI Director Eric Green spotlights the Genome Statute and Legislation Database, which recently received a major revamp to help researchers, policy analysts, and the public more easily find state-level legislation related to genomics.
… As February begins, many of us at NHGRI are working hard in preparation for the upcoming 101st meeting of the … Genomic Medicine Research Program ( PAR-18-735 ). … As genomics advances, relevant legislation must advance with it, … and monitoring career progression to better understand the issues and devise career support programs in the future. … …
Policy Issues
There are laws and policies that serve to protect the privacy of individuals' genomic information.
… uses. This page summarizes genetic and genomic privacy in these domains, along with information on the specific laws … debate whether we need further measures. … When conducting genomics research, two essential values of scientific … Genomic Data Sharing Policy below). In addition, NIH issues Certificates of Confidentiality to enable NIH-funded …
Policy Issues
Participating in genomics research is an opportunity to support exploration of the genome and help scientists understand, prevent, detect and treat disease.
… Participating in genomics research is an opportunity to support scientific … Studies For You? FAQs about Clinical Studies Legal, Ethical, and Safety Issues … Frequently Asked Questions … Get Involved … …
Policy Issues
Patients with genetic disorders and members of the public have diverse about germline genome editing.
… with genetic disorders and members of the public, both in the United States and around the world, have diverse views … not fund any use of gene editing in human embryos due to ethical and safety concerns. The statement noted that editing … have diverse about germline genome editing. … Policy Issues …
The Genomics Landscape
In the July 2021 issue of The Genomics Landscape, NHGRI Director, Eric Green, M.D., Ph.D., reflects on the legacy the LINCS program leaves as it has completed its goal of creating a large-scale, systematically generated molecular and cellular dataset.
… telework over the last 17 months will undoubtedly result in some changes to how NIH staff members function, as (like … And that trust, in turn, is built upon the scientific and ethical standards that the genomics community has carefully … synthesis; adaptation in modern biology and genetics; issues of race and genetic exceptionalism; the status of the …