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- Ethical, Legal and Social Implications (ELSI) Research Program3
- Genomics-Enabled Learning Health Systems (gLHS)2
- Impact of Genomic Variation on Function (IGVF) Consortium1
- NHGRI Genomic Data Science Analysis, Visualization and Informatics Lab-space (AnVIL)1
- Genomics Research to Elucidate the Genetics of Rare Diseases (GREGOR) Consortium1
Research Funding
A scalable and interoperable resource that leverages cloud-based infrastructure for genomic data access, sharing and computing.​
… (HBCUs), Minority Serving Institutions (MSIs), Tribal Colleges and Universities (TCUs), and Community …
The Genomics Landscape
In the May 5, 2022 edition of The Genomics Landscape, NHGRI Director, Eric Green, M.D., Ph.D., pays tribute to one of NHGRI’s founding staff members and current leaders, Bettie Graham, Ph.D., as she reached a truly remarkable milestone: 50 years of service in the federal government.
… to a FAIR data repository, and working responsibly with Tribal individuals and communities? One must consider these aspects up front, so … about helpful resources to aid researchers working with Tribal communities.  …  Last month, one of NHGRI’s founding …
News Release
Researchers at the National Institutes of Health (NIH) question advertisements by direct-to-consumer genetic ancestry kits that claim to know what it really means to be American Indian.
… Credit: Ernesto Del Aguila III, NHGRI. … The NIH Tribal Advisory Committee serves as a direct connection between tribal communities and the NIH. They lodged a concern regarding the …
Staff
Dr. Sara Chandros Hull is a co-deputy scientific director in the Office of the Scientific Director and the director of NHGRI's Bioethics Core.
… Board . Dr. Hull recently completed a detail with the NIH Tribal Health Research Office and continues to collaborate on … and training initiatives to enhance the ethical conduct of Tribal research. Dr. Hull received her undergraduate degree … as an Aspirational Basis for Partnership with Tribal Communities, American Journal of Bioethics. 21(10):14-17. [ …
News Release
NHGRI has selected Sara Chandros Hull, Ph.D., and Shawn Burgess, Ph.D., as deputy scientific directors of NHGRI’s Intramural Research Program.
… genomics research. She was recently on detail at the NIH Tribal Health Research Office, where she helped develop … policies, guidance and training programs for ethical Tribal research. Before joining NIH, she earned a Ph.D. in …
Event
On March 13-14, 2017, the National Human Genome Research Institute (NHGRI) in partnership with the Foundation for the National Institutes of Health (FNIH) hosted a strategic visioning meeting for a proposed GLEE Initiative.
… Blue Cross Blue Shield (BCBS) Ada Bends Rocky Mountain Tribal Leaders Council Judith Benkendorf American College of … Bethesda, Maryland and ~160 people attended from diverse communities including academia, industry, community-based …
Educational Resources
NHGRI participates in the South By Southwest (SXSW) conference to help increase genomic literacy.
… from middle school, high school, community colleges, and Tribal Colleges, we creatively bring cutting-edge genomic … and approaches being applied to improve outcomes in the communities where we live, work, and play. The SXSW EDU® …
The Genomics Landscape
In the December 8, 2022 edition of The Genomics Landscape, NHGRI Director, Eric Green, M.D., Ph.D., looks back on the success of the Genome: Unlocking Life's Code exhibition as it came to a close in November.
… Colleges and Universities, Hispanic-Serving Institutions, Tribal Colleges and Universities, and community colleges in …
The Genomics Landscape
In the March 2018 edition of The Genomics Landscape, NHGRI Director Eric Green highlights a strategic planning effort to establish a 2020 vision for genomics.
… will solicit input from the broader research and public communities. Workshops, satellite meetings, and 'traveling' … broad engagement. Members of the scientific and public communities are encouraged to participate in one of these … over 600 visitors. … NHGRI, in collaboration with the NIH Tribal Health Research Office, has developed a new resource …
The Genomics Landscape
In the October 2019 edition of The Genomics Landscape, NHGRI Director Eric Green focuses on recent efforts to make the human genome reference sequence useful to basic and clinical researchers and how increasing the representation of human genomic variation will remain key components of NHGRI’s Human Genome Reference Program.
… request for information to collect additional input from tribal collaborations Funding Opportunities SBIR/STTR …