Search Results
Event
On December 11, 2023, NHGRI, in collaboration with several other NIH Institutes and Offices, recently renewed the three Notices of Funding Opportunity (NOFOs) used to support investigator-initiated research on the ethical, legal and social implications (ELSI) of human genome research.
… may have about the NOFOs to Zo.Bly@nih.gov . A recording of the webinar and a list of questions and answers have been made available. … … used to support investigator-initiated research on the ethical, legal and social implications (ELSI) of human genome …
News Release
NHGRI has selected Charles Rotimi, Ph.D., as the next scientific director. In this role, he will lead the institute’s Intramural Research Program, which conducts basic and clinical research to enable a greater understanding of human disease and to develop better methods to detect, prevent and treat genetic disorders.
… and clinical research to enable a greater understanding of human disease and to develop better methods to detect, prevent and treat genetic disorders. NHGRI is part of the National Institutes of Health. Dr. Rotimi is a leading … Research Program supports more than 50 investigators who conduct a wide range of research at the forefront of …
Staff
Joy Boyer was a program director in NHGRI's Division of Genomics and Society.
… with the National Human Genome Research Institute (NHGRI) Ethical, Legal and Social Implications (ELSI) Research … since 1996. As a program director in the NHGRI Division of Genomics and Society, Joy oversees a portfolio of research, training and career development grants related …
Educational Resources
The Genetic Information Nondiscrimination Act (GINA) is federal legislation that makes it unlawful to discriminate against individuals on the basis of their genetic profiles in regard to health insurance and employment.
… unlawful to discriminate against individuals on the basis of their genetic profiles in regard to health insurance and … are intended to encourage Americans to take advantage of genetic testing as part of their medical care. GINA was signed into law on May 22, …
Event
The Ethical Legal and Social Implications (ELSI) Research Program is hosting a webinar to gather specific feedback on four potential goals for the field of ELSI research over the next decade.
… Additional Resources … At the time of this webinar, the National Human Genome Research Institute … was undergoing a Strategic Planning process with the goal of publishing the final Strategic Plan in the fall of 2020. … for the field of ELSI research over the next decade. … The Ethical Legal and Social Implications (ELSI) Research Program …
Event
The Ethical Legal and Social Implications (ELSI) Research Program is hosting a webinar to gather specific feedback on four potential goals for the field of ELSI research over the next decade.
… Additional Resources … At the time of this webinar, the National Human Genome Research Institute … was undergoing a Strategic Planning process with the goal of publishing the final Strategic Plan in the fall of 2020. … for the field of ELSI research over the next decade. … The Ethical Legal and Social Implications (ELSI) Research Program …
The Genomics Landscape
In the November 2019 edition of The Genomics Landscape, NHGRI Director Eric Green highlights the International Common Disease Alliance's scientific plenary and launch meeting in September, which included an international panel on opportunities emerging outside the U.S., North America, and Europe; discussions about polygenic risk scores; and an overview about data platforms, data sharing, and ethics.
… to develop a graphical display illustrating the scale of human genome sequence. The wall is now enhanced with a representation of ~1/1000th of the human genome sequence – specifically, about 3 million …
About NHGRI
The Genomics and Society Working Group advises on planning and priorities for genomics and society activities at NHGRI.
… Working Group was established in 2012 as a working group of the National Advisory Council for Human Genome Research (NACHGR). The mission of the Genomics and Society Working Group is to provide to … on the ELSI Research Program in the NHGRI Division of Genomics and Society. The Genomics and Society Working …
Research Training
The NHGRI Social and Behavioral Research Branch invites recent graduates to pursue multidisciplinary training in genomics and health.
… Research Branch (SBRB), an intramural research branch of the National Human Genome Research Institute (NHGRI), … … Researchers in SBRB investigate social, behavioral, and ethical factors that facilitate translation of genomic discoveries for health promotion, disease …
Research Funding
The Division of Genomics and Society focuses on the societal issues that need to be studied and addressed as genomics advances.
… The Division of Genomics and Society is responsible for exploring societal … to genomics, incorporating and extending the institute's Ethical, Legal and Social Implications (ELSI) research … NHGRI-wide activities in these areas. … The Division of Genomics and Society is one component of NHGRI's …