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- Ethical, Legal and Social Implications (ELSI) Research Program6
- Genomics-Enabled Learning Health Systems (gLHS)2
- Genetic Architecture of Complex Traits1
- Genome Technology Program5
- Human Genome Reference Program (HGRP)2
- Impact of Genomic Variation on Function (IGVF) Consortium3
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- NHGRI Genomic Data Science Analysis, Visualization and Informatics Lab-space (AnVIL)3
- Genomics Research to Elucidate the Genetics of Rare Diseases (GREGOR) Consortium2
- Developmental Genotype-Tissue Expression (dGTEx)1
- Multi-Omics for Health and Disease (Multi-Omics)1
News Release
The Genomics and Society: Expanding the ELSI Universe conference focused on issues arising from the ethical, legal and social implications of genomic research.
… testing of women with family histories of breast cancer, genomics is rapidly becoming a fixture in our lives. Genomics and Society: Expanding the ELSI … Universe, a three-day conference on the vast number of issues that spring from the ethical, legal and social …
Policy Issues
Genetic information is used by law enforcement to investigate criminal acts and exonerate those who have been convicted of crimes they did not commit.
… and arrestees, or with DNA detected at other crime scenes, in order to identify criminal suspects. The technology's … or the practice of IGG. The Department of Justice Interim Policy on investigative genetic genealogy went into effect in … been convicted of crimes they did not commit. … Policy Issues …
The Genomics Landscape
In the January 2024 issue of The Genomics Landscape, NHGRI Director Eric Green announces the appointment of Dr. Adam Phillippy as the founding director of the Center for Genomics and Data Science Research (CGDSR).
… yours — and here’s to a 2024 featuring many breakthrough genomics advances! Last year ended with exciting news from … of two events that I had the pleasure of participating in last month. Brendan Lee, MD., Ph.D. , and I recorded an … available genomic screening technologies and costs, issues with false-positive results, and future research …
The Genomics Landscape
In the August 2021 issue of The Genomics Landscape, NHGRI Director, Eric Green, M.D., Ph.D., spotlights the NHGRI Extramural Research Program and how it takes a dynamic approach to it's research portfolio to help foster groundbreaking advances in genomics.
… breakthroughs for diseases by making “pivotal investments in breakthrough technologies and broadly applicable … NIH and the White House Office of Science and Technology Policy are organizing a series of virtual listening sessions … on Wednesday, August 11, will be geared toward research on genomics, biomedical engineering and imaging, and health …
Policy Issues
In June 2013, the Supreme Court determined that DNA in its natural form cannot be patented.
… In June 2013, the Supreme Court determined that DNA in its … databases within 24 hours of being generated. This policy of open access to the genome has been a core ethos of … Human Genome Research Institute (NHGRI) to research "legal issues regarding patents" as part of the then center's …
Staff
Joy Boyer was a program director in NHGRI's Division of Genomics and Society.
… (ELSI) Research Program since 1996. As a program director in the NHGRI Division of Genomics and Society, Joy oversees a … Division of Genomics and Society. … Joy Boyer, societal issues, social policy, ethical legal and social implications, newborn …
The Genomics Landscape
In the May 2021 issue of the Genomics Landscape, NHGRI Director, Eric Green, M.D., Ph.D. notes that a number of individuals with strong ties to NHGRI have been nominated and/or appointed to serve on the White House Science Team.
… is here, and with it comes many opportunities to engage in areas related to genomics and the biomedical research … of the White House Office of Science and Technology Policy (OSTP). President Biden is elevating the role of … each willing to foster sustained attention to these issues in their research institutions and training programs; …
Policies and Guidance
This page provides an overview of Resource Sharing Plans, a required document in most NIH funding applications. Most applicants for NIH funding must provide a Resource Sharing Plan (RSP) documenting plans for sharing resources that result from their federally funded work. NIH Policies that govern the sharing of resources include the NIH Model Organism Sharing Policy and the NIH Research Tools Policy.
… What types of resources should be addressed in a Resource Sharing Plan? Please review the NIH webpage on the Research Tools Policy for the NIH definition of “research tools,” principles … journals PubMed Central (Note: See the Public Access Policy regarding the NIH requirement to submit final, …
Research Funding
The NHGRI Ethical, Legal and Social Implications (ELSI) Research Program Abstracts and Activities Database organizes abstracts for all ELSI-related activities
… projects that conduct research and education on ELSI issues. ELSI also supports other program activities such as workshops, research consortia and policy conferences related to these issues. … The ELSI … for all ELSI-related activities. … Ethical Issues In Genomics, Legal Issues In Genomics, Social Issues In …
The Genomics Landscape
In the April 2021 issue of the Genomics Landscape, NHGRI Director, Eric Green, M.D., Ph.D. talks about the NIH UNITE program's goal to end structural racism in biomedical research.
… Day, I am seriously excited about highlighting progress in areas that influence the genomics research enterprise — … to science education and outreach, to data science policy and strategy. But before you get to those stories, I … begun to identify actions to address structural racism and issues related to the lack of diversity, equity, and …