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Policy Issues

Genome editing is a method that lets scientists change the DNA of many organisms, including plants, bacteria, and animals.

… held a conference to talk about these and similar ethical issues at the International Summit on Human Gene Editing . … … including plants, bacteria, and animals. … Policy Issues …

Policy Issues

Participating in Genomics Research

Participating in genomics research is an opportunity to support exploration of the genome and help scientists understand, prevent, detect and treat disease.

… FAQs about Clinical Studies Legal, Ethical, and Safety Issues … Frequently Asked Questions … Get Involved … … understand, prevent, detect and treat disease. … Policy Issues …

Policy Issues

Regulation of Genetic Tests

Most genetic tests today are not regulated, meaning that they go to market without any independent analysis to verify the claims of the seller.

… analysis to verify the claims of the seller. … Policy Issues …

Policy Issues

Highlights of Revisions to the Common Rule

Revisions to the Common Rule modernize, simplify, and enhance oversight for human subjects research in the United States.

… given that local IRBs will have more insight into ethical issues that require consideration (.114). Enforced compliance … for human subjects research in the United States. … Policy Issues …

Policy Issues

Timeline of the Genetic Information Nondiscrimination Act (GINA)

The GINA is an important U.S. civil rights law that protects individuals from discrimination based on their genetic information.

… for their leadership on genetic nondiscrimination issues, but they were assisted by other members of Congress … based on their genetic information. … Policy Issues …

The Genomics Landscape

NHGRI’s social media activities bring genomics closer to the public

In the September 2021 issue of The Genomics Landscape, NHGRI Director, Eric Green, M.D., Ph.D., details how social media provides NHGRI staff with a space to talk about their work, make genomics topics easy to understand, and show how genomics can positively affect people.

Policy Issues

IDE Greenhouse

NHGRI has created the IDE Greenhouse as an educational resource to help increase understanding of the regulation in the genomics context.

… of the regulation in the genomics context. … Policy Issues …

Policy Issues

What do People Think About Genome Editing?

Patients with genetic disorders and members of the public have diverse about germline genome editing.

… have diverse about germline genome editing. … Policy Issues …

Policy Issues

How is Genome Editing Used?

Genome editing is currently being applied to research on cancer, mental health, rare diseases, and many other disease areas.

… rare diseases, and many other disease areas. … Policy Issues …

Policy Issues

How Does Genome Editing Work?

Scientists have edited genomes for many years, but CRISPR technology has improved the speed, cost, accuracy, and efficiency of genome editing

… accuracy, and efficiency of genome editing … Policy Issues …