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- Ethical, Legal and Social Implications (ELSI) Research Program3
- Genomics-Enabled Learning Health Systems (gLHS)2
- Human Genome Reference Program (HGRP)1
- Impact of Genomic Variation on Function (IGVF) Consortium1
- NHGRI Genomic Data Science Analysis, Visualization and Informatics Lab-space (AnVIL)1
- Genomics Research to Elucidate the Genetics of Rare Diseases (GREGOR) Consortium1
For Teachers
The Your Genome & You infographic introduces the basics of genetics and genomics, and how the science impacts our lives.
… designed by the National Human Genome Research Institute's Community Engagement in Genomics Working Group , which brings together community liaisons, health advocates and health practitioners …
Research Funding
The three research domains to be considered for support by the NHGRI Ethical, Legal and Social Implications Research Program.
… Implementation Diversity and Inclusion in Genomic Research Community Engaged and Community Driven Research Design and Conduct of Genomic … and qualitative methods; and research that involves direct engagement with stakeholders. A number of other NIH …
Research at NHGRI
An international investigation into the genetics of severe acute malnutrition in children.
… analyses downstream. Each site will engage with local community advisory boards (CABs) to develop best practices … collection standards, beta testing of PocketLIMS, and engagement with local community advisory boards. Our next meeting is planned for …
News Release
Knowing your family health history can aid in detecting unique disease risks and lead to better prevention and treatment.
… turned to Reddit to answer questions from the Reddit community about their work on family health history as part … turned to Reddit to answer questions from the Reddit community about their work on family health history as part … of research. How can researchers foster trust and increase engagement in such communities? From Koehly_Lab : In Project …
Event
On October 29, 2021, NHGRI will host the Future Directions of the NHGRI Analysis, Visualization, and Informatics Lab-space (AnVIL) workshop to identify gaps, challenges and future opportunities related to NHGRI’s investments in the AnVIL’s cloud-based infrastructure, tools and services.
… Concurrent Breakout Rooms  Data Submission and Consortia Engagement  Moderators: Adam Resnick, Ph.D. (Children’s … needed to expand, diversify and support the AnVIL user community. The agenda includes four breakout rooms divided … into two sessions: 1) Data submission and consortia engagement 2) Analysis tools 3) Infrastructure 4) Outreach …
Policy Issues
NHGRI wants to ensure that all populations benefit from the advances of genomics research.
… opportunities for professional development, networking and community engagement. Workshop on the Use of Race and Ethnicity in … health and health disparities research. Inclusion and Engagement of Underrepresented Populations in Genomics A …
Research at NHGRI
The Social and Behavioral Research Branch conducts research to apply genomic discoveries to improve health and clinical care.
… the integration of genomic discoveries into clinical and community contexts. … Our research focuses on a spectrum of … reality to understand the clinician-patient relationship. Community translation of genomic discovery We evaluate … influence to improve knowledge of genomic information and engagement in risk-reducing behaviors. We also consider the …
Professional Development
This is a fellowship program designed for recent undergraduates to gain exposure to and training in multiple career paths that advance public service for human genetics and genomics.
… public policy and advocacy; public education and engagement; science communication; nonprofit management; … Society is committed to building a diverse and inclusive community of human genetics and genomics professionals. ASHG … are/were enrolled in Tribal Colleges and Universities, community colleges, Hispanic-serving institutions, or …
MINC
The MINC teams were made up of an administrator and an educator. They learned a lot from this initiative that they wanted to share with you.
The Genomics Landscape
In the July 2024 issue of The Genomics Landscape, NHGRI Director Eric Green welcomes the inaugural class of the ASHG-NHGRI Genomics and Public Service Fellowship Program.
… on ASHG’s website and elsewhere. NHGRI’s Education and Community Involvement Branch is hosting its annual Short … Designed for middle school and high school teachers and community college faculty teaching scientific courses, this … development opportunities in public policy, education and engagement, science communication, and scientific …