Search Results
Staff
Nancy Sey was an Education Outreach Specialist in the Education and Community Involvement Branch at NHGRI from 2024 to 2025.
… Nancy Sey was an Education Outreach Specialist in the Education and Community Involvement Branch (ECIB) at NHGRI from 2024 to 2025. Nancy is a dedicated education and outreach specialist with extensive experience … Nancy Sey was an Education Outreach Specialist in the Education and Community …
Educational Resources
Newborn genetic screening is testing performed on newborn babies to detect a wide variety of disorders.
… Disorder, Family Health History, Genetic Counselor, Healthcare …
Staff
Katie Sandlin is an Education Outreach Specialist in the Education and Community Involvement Branch at the National Human Genome Research Institute.
… Katie Sandlin brings a strong background in genomics education and community engagement to her role as an Education Outreach Specialist in the Education and Community Involvement Branch (ECIB) at NHGRI. … Katie Sandlin is an Education Outreach Specialist in the Education and Community …
Event
On March 13-14, 2017, the National Human Genome Research Institute (NHGRI) in partnership with the Foundation for the National Institutes of Health (FNIH) hosted a strategic visioning meeting for a proposed GLEE Initiative.
… Society Jim Thomas NIH/NHGRI Ivory Toldson Quality Education for Minorities (QEM) Network Beth Tuck NIH/NHGRI … organizations, non-profits, government and K-16 education organizations. At the meeting, participants … Genomic Literacy Education and Engagement Strategic Visioning Meeting …
Educational Resources
The Genetic Information Nondiscrimination Act (GINA) is federal legislation that makes it unlawful to discriminate against individuals on the basis of their genetic profiles in regard to health insurance and employment.
… GINA, Federal Legislation, Ethics, Genetic Information, Healthcare …
Explainer
Appropriate use of population descriptors in research is a critical scientific issue that is important for advancing genomic science and improving healthcare across human populations.
… is important for advancing genomic science and improving healthcare across human populations. Thoughtful use by … of people participating in research and to inform some healthcare decisions.  The inaccurate belief that human … factors that may contribute to health and disease. In healthcare, race and ethnicity have been improperly treated …
News Release
The newly launched Impact of Genomic Variation on Function (IGVF) consortium to include 30 U.S. sites.
Health FAQ
Discuss these questions with your doctor or health care provider.
… The Democratizing Education Project welcomes your feedback about the sickle … you to use these educational materials to talk with your healthcare provider or a clinical trial team. … decide to receive  gene therapy, your clinical team and healthcare providers will make a plan for the treatments you …
Fact Sheet
With increasing complexity in genomic data, researchers are turning to artificial intelligence and machine learning as ways to identify meaningful patterns for healthcare and research purposes.
… learning as ways to identify meaningful patterns for healthcare and research purposes. … learning as ways to identify meaningful patterns for healthcare and research purposes. … learning as ways to identify meaningful patterns for healthcare and research purposes. …
News Release
NHGRI researchers have developed the Families Sharing Health Assessment and Risk Evaluation (SHARE) workbook, which helps people use their family history to assess their risk for heart disease, diabetes, breast cancer and colorectal cancer.
… participants felt motivated to share it with others, like healthcare providers, in the future. “It was incredibly … participants, the researchers plan to include community education programs in future iterations of the workbook. “Our …