Search Results
Research Funding
The three research domains to be considered for support by the NHGRI Ethical, Legal and Social Implications Research Program.
… the Rights of Individuals and Groups Law, Regulation and Policy Governing Genomics Industry, Commerce and Economics … … Research Design and Implementation Diversity and Inclusion in Genomic Research Community Engaged and Community Driven … identifies and addresses ethical, legal, social and policy issues that arise for individuals, communities and care …
Research Funding
Applications demonstrating excellent grantsmanship, grant mechanisms and research methodologies common to ethical, legal and social implications research.
… independent NIH research support during this transition in order to help awardees to launch competitive, independent … Lessons, the Domestic Legal Landscape, and Options for U.S Policy Anya Prince 2015 Summary Statement Full Application … of Germline Gene Editing: Ethical, Legal, and Social Issues Bryan Cwik 2018 Summary Statement Full Application …
The Genomics Landscape
In the December 3, 2020 edition of The Genomics Landscape, Dr. Eric Green spotlights on ELSIhub.
… continue to be optimistic that we will find ourselves in very different COVID-19 circumstances by next … opportunities, solicit expert commentary, obtain advice on policy or legislation, and arrange mentor/mentee … and capacity building efforts related to bioethical issues Research supplements to promote diversity in …
The Genomics Landscape
In the June 2024 issue of The Genomics Landscape, NHGRI Director Eric Green recognizes the 2023 recipients of the Bettie J. Graham Leadership Award for Enhancing DEIA in the Genomics Workforce.
… this meeting, was announcing the first cohort of fellows in the new American Society for Human Genetics (ASHG)-NHGRI … the United States. …  NHGRI has published its funding policy related to the Fiscal Year 2024 budget , in which NIH … Committee for Practitioner Education in Genomics issues meeting report … Charles Rotimi awarded Arthur S. …
Research Funding
The ELSI Publications and Products Database organizes publications for ELSI projects and activities by the last name of the principle investigator.
… Since its creation in 1990, the Ethical, Legal and Social Implications (ELSI) … products from research supported by the ELSI program on issues related to using DNA for identification purposes in a … of the principle investigator. ​​ ​ … Ethical Issues In Genomics, Legal Issues In Genomics, Social Issues In …
Organizational Structure
NHGRI’s Office of Genomic Data Science (OGDS) provides leadership, strategic guidance and coordination for NHGRI activities, programs and policies in genomic data science.
… The Office of Genomic Data Science (OGDS) was established in 2021 to: Develop, promote, support and coordinate genomic … of the NACHGR in the numerous and increasingly complex issues at the interface between genomics and data science. … career researchers September 7, 2023 NIH data management policy commits to making research results available February …
Events
Data sharing has been a central tenet of the field of genomics since the Human Genome Project.
… … Data sharing has been a central tenet of the field of genomics since the Human Genome Project. While many recognize … and risks while crafting genomic data sharing policies. In this session, the four panelists will describe evolving … … Data sharing has been a central tenet of the field of genomics since the Human Genome Project. … Data sharing has …
Policy Issues
Synthetic biology is a field of science that involves redesigning organisms for useful purposes by engineering them to have new abilities.
… world are harnessing the power of nature to solve problems in medicine, manufacturing and agriculture. … Redesigning … the Presidential Commission for the Study of Bioethical Issues  and the National Academies of Sciences, Engineering … as laid out by the Dual Use Research of Concern (DURC) policy. For more information about the biosecurity policies …
Policy Issues
Payers such as insurance companies and Medicare need systematic ways of evaluating genetic tests for reimbursement.
… available through newly developed genetic tests. In order for patients to have full access to the benefits of … of genetic testing. There are several reports created by policy and scientific experts seeking to advise Federal … of evaluating genetic tests for reimbursement. … Policy Issues …
Careers and Training
The Health Disparities Unit (HDU) in the Social and Behavioral Research Branch (SBRB) of the National Human Genome Research Institute (NHGRI) is recruiting a postdoctoral fellow interested in the study of the intersection of genomics, social determinants of health and health inequities.
… The Health Disparities Unit (HDU) in the Social and Behavioral Research Branch (SBRB) of the … fellow interested in the study of the intersection of genomics, social determinants of health and health inequities … genetic therapies into health care, as well as societal issues of genomics, race and human genetic variation. … The …