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The Genomics Landscape
In the February 2024 issue of The Genomics Landscape, NHGRI Director Eric Green spotlights the Genome Statute and Legislation Database, which recently received a major revamp to help researchers, policy analysts, and the public more easily find state-level legislation related to genomics.
… major revamp to help researchers, policy analysts, and the public more easily find state-level legislation related to … major revamp to help researchers, policy analysts, and the public more easily find state-level legislation related to … major revamp to help researchers, policy analysts, and the public more easily find state-level legislation related to …
Policies and Guidance
Broad data sharing promotes maximum public benefit from federally funded genomics research. NHGRI supports the broadest appropriate genomic data sharing with timely data release through widely accessible data repositories. These repositories may be open access (unrestricted) or, if more appropriate, controlled access.
… Broad data sharing promotes maximum public benefit from federally funded genomics research. NHGRI …  Workshop on Sharing Aggregate Data May 19-20, 2016  Public Webinar on the Draft Genomic Data Sharing Policy … Research Data … Broad data sharing promotes maximum public benefit from federally funded genomics research. NHGRI …
Research at NHGRI
The Democratizing Education for Sickle Cell Disease Gene Therapy project developed patient-focused educational materials for the sickle cell community.
… Gene Therapy project utilizes a deliberative stakeholder-engagement approach to develop patient educational materials …
Media Advisory
NHGRI will host a two-day symposium addressing historical and present-day constructions of disability and ableism, with a focus on the history and lived experiences of people with disabilities in the context of genomics and genetics.
… genomics and genetics. The event is free and open to the public. Follow #NHGRIevents on social media for more … genomics and genetics. The event is free and open to the public. Follow #NHGRIevents on social media for more …
Event
The Excellence in Clinical Research Seminar Series is designed to facilitate clinical research in the rare disease space with a focus on aspects of regulatory medicine and clinical trials in Mendelian disorders.
Administrative
NHGRI branch responsible for education and community involvement programs to increase understanding of genomics and its ethical, legal, and social issues.
… involvement programs to engage a broad range of the public in understanding genomics and accompanying ethical, … … ECIB's education programs include those to inform the public of the latest advances in genomics, as well as to … The branch leads programs and initiatives to promote the engagement of diverse communities in understanding genomics …
The Genomics Landscape
In the April 2020 edition of The Genomics Landscape, NHGRI Director Eric Green provides an update on the final stage of the Genomics2020 strategic planning process; the NIH website for COVID-19 information, the Gene documentary debut on PBS and more.
… if you like what you see and seek more active engagement, go ahead and download the PDF file and try it … the research, healthcare, education, policy, and diverse public communities; these events have included town halls, … and Twitter Chat DNA Day Twitter chat – April 9 Kids First public spring webinar – May 18 Genomics Videos 30th …
Research Funding
The three research domains to be considered for support by the NHGRI Ethical, Legal and Social Implications Research Program.
… Understanding and Use of Genomics Healthcare System and Public Health Genomics and the Rights of Individuals and … and qualitative methods; and research that involves direct engagement with stakeholders. A number of other NIH … and the healthcare industry. Evolving conceptions of a public "duty" to participate in genomic research. How …
For Teachers
The Your Genome & You infographic introduces the basics of genetics and genomics, and how the science impacts our lives.
… the National Human Genome Research Institute's Community Engagement in Genomics Working Group , which brings together … Institute’s Partnership for Community Outreach and Engagement in Genomics. To find out more about genetics and … Institute's Partnership for Community Outreach and Engagement in Genomics. Take a look: …
News Release
The American Society of Human Genetics and NHGRI have teamed up to sponsor the new Genetics and Education Fellowship.
… the benefits of genomics will require an educated public who can understand the implications of genomics for their health care and evaluate the relevant public policy issues,according to the National Human Genome … the fellow will have an option to do a rotation with a public or private organization involved in genetics …