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Fact Sheet
Several regulations and policies stipulate the information that must be given to research participants prior to their enrolling in a study.
… or data are de-identified); however, there may be other policy or ethical reasons for conveying that such research … In accordance with the NIH Genomic Data Sharing (GDS) policy , researchers who intend to use human-derived …
Staff
Jenny Montooth is the social media specialist for the NHGRI Office of Communications.
… National Human Genome Research Institute (NHGRI) as the social media specialist for the Office of Communications in 2017. Jenny runs NHGRI’s social media accounts and helps to manage the Twitter account … for Best Government Twitter Presence . Jenny has led the social media strategy for major NHGRI efforts, including the …
Talking Glossary
Una enfermedad (o afección) compleja, cuando se analiza en el contexto de la genética, refleja un trastorno que se produce por las contribuciones de múltiples variantes genómicas y genes además de influencias considerables del entorno fÃsico y social.
… además de influencias considerables del entorno fÃsico y social. … A complex disease (or condition), when discussed in … with significant influences of the physical and social environment. For this reason, complex diseases are … además de influencias considerables del entorno fÃsico y social. … Talking Glossary …
MINC
Use the resources to help you design an education program or policy for your setting.
… the resources to help you design an education program or policy for your setting.  Resource Title Type Cost Action … Module Pdf Free Fox Chase PA: Risk Assessment Program Policy Free Genetics Home Reference Online Free Genetics of … the resources to help you design an education program or policy for your setting. … Use the resources to help you …
Research Funding
The centers study in innovative ways to address important ethical, legal, and social issues related to advances in genomics.
… The NHGRI Ethical, Legal and Social Implications (ELSI) Research Program has funded … genomic sciences, clinical research, clinical and health policy, ethics, law, the humanities, economics, political science, anthropology and other basic social sciences. Be highly innovative and develop new …
Research at NHGRI
The Metabolic, Cardiovascular and Inflammatory Disease Genomics Branch studies the genomic and social determinants of complex diseases.
… Disease Genomics Branch (MCIDGB) studies the genomic and social determinants of complex diseases. … Investigators … behavior, biosurveillance, and molecular, genomic and social determinants; their effects on gene expression; as … addition, they conduct research related to the effects of social determinants on cardiovascular disease morbidity and …
Genetic Disorders
Autism is characterized by impaired social interactions, problems with verbal and nonverbal communication and repetitive behaviors.
… group of developmental disorders characterized by impaired social interactions, problems with verbal and nonverbal … group of developmental disorders characterized by impaired social interactions, problems with verbal and nonverbal … any individual and is not based on ethnic, racial or social background. The incidence of autism is the same all …
Health
Genomic medicine involves using genomic information as part of clinical care and the health outcomes and policy implications of that clinical use.
… therapeutic decision-making) and the health outcomes and policy implications of that clinical use. Already, genomic … on engagement of the public, healthcare providers and policy makers in genomics topics: Education and Community Involvement Branch (ECIB) and Policy and Program Analysis Branch (PPAB) . Resources and …
Educational Resources
Autism is a developmental brain disorder characterized by impaired social interactions, communication problems, and repetitive behaviors.
… a developmental brain disorder characterized by impaired social interactions, communication problems, and repetitive … related to brain development that can cause significant social, communication and behavioral challenges. Symptoms … a developmental brain disorder characterized by impaired social interactions, communication problems, and repetitive …
Administrative
The Management Analysis and Workforce Development Branch provides advisory services, develops policies and procedures, and coordinates implementation at NHGRI.